Shitty Obamacare

In 2011 my daughters and I went to Spain for a week. During that visit, my older daughter fell down some stairs, severely cut her head, and had to ride in an ambulance to the emergency room. She was stitched up and given all her care products and prescriptions by the doctor at the hospital. As a non European citizen, the visit cost us $64 American dollars. For everything. For the ambulance ride, the visit, the stitching, the care products and drugs. A similar visit in the US would be somewhere in the neighborhood of $6000, if not more. And since the ACA went into effect, it’s only gotten worse.

The ACA is not a boon to Americans. It’s not. Do you know that it’s virtually impossible to get a plan on low or moderate income that doesn’t have a multi-thousand dollar deductible? Somehow, in over 2000 pages as a law, someone didn’t think to tell insurers to cap deductibles. It’s insane. Pretend to be an average American. Go to the “marketplace.” Look at the options there. You’ll see that all the plans have insane deductibles. The only plans that don’t are too high priced for people in lower income brackets. It’s a joke.

The ACA isn’t a boon. It’s a legislative nightmare. It’s a paperwork nightmare. It’s raised costs, not lowered them. Emergency plans available before the ACA that covered essentially the same thing were cheaper than the plans under the ACA. The ACA operating in reality is anything but an example of success unless you’re an insurance company executive. What would be a real success would be getting rid of the for-profit middle man in healthcare. Then when someone needs to go the doctor, it would cost what it should instead of lining the pockets of everyone along the way while the person in need of care suffers financially in addition to suffering with their health.

What the ACA has done is to take public dollars and use them for privatized profit. People whose health insurance is “subsidized” get their insane premiums paid for by tax dollars. So greedy ass insurance company charges $740 a month for their crappy plan (that’s $8880 a year!) and the government pays part of that premium out of tax dollars. The shitty insurance company theoretically can’t profit more than a certain percentage, but that doesn’t mean they can’t pay their executives more and have less in “profit.” It’s all a big game, but it works out the same: public tax dollars paying a greedy middle man to skim profit off before providing subpar healthcare. And people are worried about socialized medicine because they don’t want to pay higher taxes? The logic escapes me. Really the problem is that the greedy bastards who lobby for the insurance companies have all the “lawmakers” in their pockets. It’s a giant, shambling scam.

We never asked for our daughter’s insurance company to reimburse the $64 spent in Spain the day she was injured. We paid for it because we could because that kind of healthcare is truly affordable. The Affordable Care Act? Not so much.

In. Som. Ni. A.

“Hmm. We’re having trouble finding that site.”

Well, then keep trying, bitches! Seriously. Give the damn wifi a minute to hook its ass up to the computer before turning into a big fat quitter. Jeez.

In. Som. Ni. A. That’s what I have. I diagnosed myself. I didn’t even use Dr. Internets, or read Dr. Wikipedia, or anything like that. I just figured it out all by myself because I’m brilliant and have lots of star stickers.

I thought I had cured my In. Som. Ni. A. You can read all about it here if you’re bored or don’t have a sock drawer to arrange or something like that. And while I truly did experience some relief there for a while, and although sleeping with wifi on next to my head is akin to setting off a bullhorn three inches from my ears, I didn’t actually cure anything because the shit came back with a vengeance a couple of years ago and it likes sticking around like a bad rash. It’s like foot fungus. You put on the cream between your toes and a few days later it’s like your feet are normal or something, but really, they aren’t because one day you’ll wake up with a burning fire on your feet and know that the cream did NOTHING.

That’s how the In. Som. Ni. A. is for me. Thought I beat it down. Thought I cured it. Wrong and wrong again. That’s what I get for making assumptions.

Back when I lived in Portland and during the time I had a regular doctor for a decade because I was being the poster child for public healthcare (see that here), I went to her and asked for a sleep test. My best friend suffers from some of the worst sleep apnea in the whole world and she had been listening to me lament my In. Som. Ni. A. for decades, literally. One day after I was complaining in an incoherent rambling manner (kind of like this blog, actually) because I had been without regular sleep for so long, she said, “You need to get a sleep test. What if you have some sleep disease like sleep apnea that can kill you if left untreated?”

This of course scared the crap out of me because I can’t die before my children are grown and really don’t want to die anyway because I’m too young for that shit and who would take care of my animals and I’m digressing, probably because I’m so frickin’ tired. ANYWAY, so I asked my doctor if I could have a sleep test and she laughed at me. Yes, she did. She laughed! She said the sleep testing center told her that if she sent one more person over to have a sleep test for In. Som. Ni. A. they were going to kill her. Well, they didn’t say they would kill her. I actually don’t remember what she said they said they would do to her if she sent another insomniac for a sleep test, but they would do something really, really bad, so she wouldn’t let me go. Bummer.

This is the same doctor who wouldn’t let me have cortisone shots in my frozen shoulder when it was in the freezing stage and I thought maybe I was going to throw up sometimes from the pain in it. She told me she had had two frozen shoulders and they froze, and then they unfroze and so I could just suck it up. I really liked this doctor, but sometimes she was a little bit like Katherine Hepburn or something. I’m not sure why I thought she was like Katherine Hepburn. Maybe she was a little entitled? Maybe she was like someone who had all sorts of people she could order around when her arms didn’t work so it didn’t matter that they didn’t work. I am not like that. I do not have people in my life I can order around when things don’t work. I need them to work so I can do stuff. And sometimes that shoulder would hurt so badly it felt like maybe I would vomit from the pain and I have a VERY high pain threshold, so it’s saying a lot to say it made me nauseated from the pain.

Again, ANYWAY. I don’t know how I ended up here in this story, but I did. The point is that I’m getting tired of being tired all the fucking time. I wonder if some of the many people in my life who have decided they don’t like me and don’t want to know me anymore got together and put a curse on me and gave me In. Som. Ni. A. There are enough of them, I think they could probably put out some really ugly vibes if they wanted to. But at the same time, I also don’t think I’m that important to them in their scheme of things so it’s unlikely, but I do have some sage so maybe I should just burn it anyway in an effort to rid myself of the possible curse. I will try that. I am at the point where I’ll try anything.

I got new health insurance and it’s AWESOME health insurance. I’m not with the same medical group I was with when I had the wonderful public health insurance I used to have. I don’t know if that kind exists anymore. Obamacare and all the insurance companies made sure of that. But I have this paid for health insurance and it’s wonderful and I have a new doctor, so I’m hoping maybe I can beg and they’ll find a cure for my In. Som. Ni. A. that doesn’t involve horrible drugs that make me feel like I’m stuck in slime or make me drive my car to my ex’s house in the middle of the night and climb into bed with him. That happened to me once about 11 years ago. Took this stupid sleeping pill and woke up across town in bed with my ex. Didn’t remember one minute of the experience. I have to AVOID that shit for sure. I don’t want to die, remember?

ANYWAY. Digressions seem to be par for the course in this blog post. The point is that I’m going to try and see if a new doctor has some new ideas. It can’t hurt. I’ll also try the sage burning. And maybe chanting. Or maybe moaning. I could be like Harry in When Harry Met Sally and lie in bed and moan.

Moan.

Moan.

Moan.

I can dream, can’t I?

No, I can’t, because I can’t fucking sleep and you have to be sleeping to dream.

Shit.

Dear Shaun T

Dear Shaun T,

I can’t say if I’m getting ripped. I look the same to me. (Body dysmorphia, much? Nah, I just can’t tell close up.) First I did your Insanity workout and I truly thought it was IN-sane. Now I’m in the Beta phase of T-25, and all I can say is that it kicks my ass to insanity and beyond. I thought 25 minute workouts would be a cakewalk after Insanity. Hell, most of the time those workouts near the end were a full hour. What I didn’t realize was that all those breaks in Insanity are a Godsend and the lack of breaks in T-25 is cruel and unusual punishment. My forearms are quivering as I write this and sweat is dripping down my ribs. My headband is soaked. I feel like I’ve been beat up a little.

I hope to hell I’m getting fit, that’s all I can say. Not because I want some ripped body everyone will envy, but because I want to be strong to live long for my daughters. Arghhh!

How to Stop Coughing

For those of you who know I am a fan of Vicks™ on the feet, and think that this post is going to reiterate that, think again. I have something better that works like a charm. It seems magic, it works so well. It works for adults as well as children.

A couple of years ago during a particularly bad cold where I could not stop coughing no matter what, I wanted to determine what a cough was exactly so that perhaps I could then figure out how to stop it. I had been coughing for days, couldn’t sleep, and was sick to death of the constant tickling in my throat and ache in my head from coughing and coughing and coughing.

I figured out that a lot of cough is a reflex designed to prevent pulmonary aspiration, promote the movement of cilia in the lungs, and to clear airway debris. The reflex is partially triggered by blood in the throat. The purpose behind plasters (covering the chest or feet with different ingredients) to stop coughs is to pull blood away from the vessels into the throat. The point then, of putting Vicks™ or its equivalent on the chest or feet is to draw blood away from the throat, thereby relieving the cough.

I became a major fan of the Vicks™ approach because it worked so well on my baby daughter, who was age one at the time. I figured this out and was suffering mightily from a cold as well. I had given her the children’s version of cough medicine and it wasn’t working any better than the adult version was working for me. My research also brought up medical study after medical study showing how ineffective cough medicine really is. When I put Vicks on my baby’s feet, her coughs would stop within a minute. It was miraculous. She would be sleeping peacefully within minutes.

Yet the Vicks™ approach did not always work so well for me during a particularly bad cold this fall. I have a friend who complained it did not work for her at all. Lying awake coughing one night, I pondered this. Why would it work so well for small children and not adults? The answer it seemed to me was that the soles of the feet of adults are thicker than those of small children. One part of the Vicks™ on the feet approach that I did not like was that I had to spread it on really thick and cover my feet with socks, otherwise the sheets would get covered in petroleum jelly, the ingredient in Vicks™ that holds it together. I scanned my body, considering all the places where blood vessels would be near the surface that would take blood away from the neck. I realized that the wrists are just about perfect. The veins are right there near the surface of the skin, and wrists are far away from the neck.

I started putting Vicks™ on my wrists. It worked much better than feet. However, there was still the issue of petroleum jelly getting all over everything and leaving an oily residue, even after washing. The ingredients in Vicks are camphor, menthol, and eucalyptus. (Incidentally, I never actually used the Vicks™ brand because it is stupidly expensive and the generic version is exactly the same thing.)

Then one afternoon my teenage daughter pointed out that the ingredients in pain relieving cream (aka BenGay™, Icy Hot™, Mentholatum Deep Heat™, and the lot) are virtually identical, except without the petroleum jelly. We had a couple of tubes of generic pain relieving cream. The next time Milla had a cold, she used this on her wrists and claimed it worked better than anything we had used to date. The ingredients are camphor, menthol, and methyl salicylate, which is essentially wintergreen oil. The best part about this stuff is that it is extremely cheap (I paid $2.39 for a 4 ounce tube), and because the veins in the wrist are so close to the surface of the skin, you do not need much to get a result. The cream is not greasy and doesn’t leave any residue on the clothes. Plus the wintergreen smells good. I was also able to purchase a menthol stick designed for sore muscles, which is the best approach of all. Menthol has become our new coughing charm.

My 5-year-old has had a cold for about a week. She sleeps with me and started coughing several nights ago. I keep a stick of menthol rub on the bedside table. She coughs, I rub a small amount on her wrists, the coughing stops in under 20 seconds and she stays asleep for several hours. It’s miraculous. One night, I felt a tickle in my throat that kept on long enough I thought it would erupt in a huge cough. I rubbed on a small amount of menthol. The tickle disappeared. We are both getting sleep, and sleep is the best remedy to cure the cold that causes the cough in the first place.

One small caution: menthol is painful if you get it in your eyes. Be sure to wear long sleeves and cover your wrists after applying so that if your arm is up near your face, you don’t get it in your eyes. I’ve applied it to the inside of the elbow with the same success as the wrists, but with less risk of getting the menthol into the membranes of the eyes.

This works. I can’t recommend it enough. Want to stop a cough? Put menthol on your wrists or anywhere else you see veins near the surface of your skin. It works.

Interestingly, over the summer, we spent a weekend at the coast. I’d had a bit of a niggling cough off and on. Nothing major, but irritating periodically. I did not bring any sort of menthol to the beach with us. Lying there awake with the niggling cough, I considered what else might work. I had read that toothpaste has menthol in it, and it certainly has peppermint oil, which is the original ingredient in menthol. Worn out I figured, why not? I got up, got the travel toothpaste, and smeared some on my wrists. The cough ceased. Both nights we were there it worked. I slept and the cough was never able to really take hold.

One thing to note, if your cough is caused by inflamed lungs, smoking, or something more chronic, this won’t work. This is for the cough that is caused by blood in the blood vessels of the throat. If the cough is caused by something other than blood in the blood vessels in the throat, this is not the remedy.

If you try this, let me know how it worked for you in the comments section. I’m sure others would love to hear of your experience as well.

Beets Turn Urine Pink

I don’t love beets. I love most vegetables, including many that others don’t generally like, but not beets. It is because of this that I have not eaten many beets in my life and I did not know that eating beets could turn one’s urine pink or red. I had no clue. Last Friday, when my 3 year old went potty and her poop and pee was red, I assumed she had blood in her stool, freaked, and called her doctor. The advice nurse asked a bunch of questions, but not whether she had eaten beets, and then said I should take her to urgent care the next morning (this was because it was after hours on Friday).

Four hours later, my daughter went potty again. This time she only peed and it was red. Further freaking, as this meant the redness came from pee and not poop, and could thus be related to kidneys and whatnot. Again a call. This time, advice nurse advised we go to urgent care that night. As it was 9:30, the only urgent care in our network was a half hour drive away. Yowza.

We all bundled into the car (we all being me, Milla, and Isabel) and headed out to the middle of nowhere to sit in a waiting room. We were finally escorted back and Isabel was urged to pee. She could not. They gave her apple juice. She peed. They tested it. No more pink and no issues. They could not find anything. Finally, someone asked if she had eaten beets. Well, I did not know. She had been to preschool earlier in the day. Although they were not normally on the Friday, perhaps she had eaten beets. The doctor sent us home with 2 prescriptions for bottom cream and a directive to go to our primary doctor as soon as possible during the regular week.

The next morning I called her preschool and left a message asking if she had eaten beets. We were not able to get into the doctor until Wednesday. In the meantime, no more pink pee and preschool did not return my call (she told me later while apologizing for not calling back that she rarely checks her home line messages–oops!). On Wednesday, while waiting for our dear doctor, I decided to call preschool again, this time the owner’s mobile phone. Lo and behold, it turned out that my darling daughter had indeed eaten beets.

In case you didn’t know it, eating beets turns one’s pee and poop pink or red. This is my public service announcement for the day (or maybe it is a pubic service announcement, but that is a really bad pun).

Autumn — Chapter 15

Read Autumn — Chapter 14

In spring of 2003, I graduated from law school. I studied for and completed the bar exam. After taking the test but before getting the results, I was hired by a law firm. Whether I would keep the job was contingent upon my having passed the bar. The firm was in NE Portland, a forty minute drive from our country suburb house in the middle of nowhere.

The reality of consequences was gradually squeezing me into the accepting that some decisions can impact a life for a long time. Less than three years earlier, during my first term in law school, I discovered with a panic that perhaps I had made a grave error. Yet the cost of that error was already well over ten-thousand dollars. If I quit, I would have to repay that sum, and if I wasn’t practicing law, how would I do that? And so I soldiered on.

My dismay grew the remainder of that year. However, second year was an improvement, and I began to believe perhaps the error was not so disastrous as I first thought. By graduation and beyond, I had returned to my original assessment, that I should never have gone to law school. Only after completion I was much further in debt, and much more discomposed. While I loved the academic rigor of law school, I was not enamored of the practice of law. I began to see the entire enterprise as one magnificent, horrendously expensive mistake.

Simultaneously, I was coming to terms with personal consequences as well. I knew three months after meeting Bjorn that we were not the most suitable pair. We were simply completely different. We could spend forty-five minutes arguing a point, only to discover we were arguing the same side. I was extremely energetic, always on the move, and constantly trying new things. Bjorn took life at a slower pace. He preferred hanging out at home and watching sports on television to buzzing around to various events. When we bought the first house, even though it was brand new, I wanted to dive in and start new projects, fixing it up. Bjorn liked it fine the way it was. About our only real connection was the love we jointly shared for our daughter.

Life was forcing me to take a good, hard look at the choices I had made, often on the fly, and determine whether a course correction was in order. I was driving nearly 45 minutes in one direction to my job. I didn’t hate the job, but I didn’t love it either, and making that commute seemed not worth it. I was living in a house and neighborhood with others who did not share my values, my politics, or much of anything except real estate. And sadly, I knew I was no longer in love with the father of my child, and nor was he in love with me. House linked to career linked to relationship, a concatenation of choices was leading me down the path to misery. Change was in order.

Bjorn and I had discussed ending our relationship several times over the course of a year. Early in the pre-dawn hours of the new year, after leaving a New Year’s Eve party at a friend’s house in Salem, the two of us were rehashing the menu from the evening as we drove along the winding country roads in the dark.

I was always the health nut, eliminating high fructose corn syrup and partially hydrogenated oil years before it became commonplace to do so. Bjorn liked junk food and fast food, and didn’t feel bad about it or any need to eat any differently. The party food had been mostly junk food and I was lamenting the lack of healthy snacks. I was also hungry.

“If you would just eat the junk, there wouldn’t be a problem,” Bjorn informed me, driving down the blackened, curved highway under the cold, winter moon and low, shredded clouds.

“I don’t have a problem,” I retorted. “We are just different. This is what I have been saying for months now. This is just one of many reasons why I do not think we are good together or for each other.” The passenger seat where I sat was reclined back, nearly touching the car seat holding a sleeping Milla. I slumped there, trying to make myself comfortable.

Bjorn didn’t say anything for a long time, such a long time in fact that I began almost to doze off. Then out of the silence he said, “You’re right.”

And with that, we ended our relationship of five and a half years.

Even though we were no longer a couple, neither of us immediately moved out and on. We had recently decided to sell the country suburb house and move into Portland. We had been looking for a house together, and I simply switched and began looking for a house on my own. Bjorn had been working as an engineer, but wanted to move into another area of engineering entirely, an area in which he was unlikely to find employment in the Portland area. He had begun sending out resumes to companies in other cities.

I wanted an old house, preferably a bungalow. I had been looking and looking, but this was the beginning of the housing bubble and prices were starting to get really steep. It was still possible to find affordable houses, but they usually came with another sort of price in that they were further out, in a less desirable neighborhood, or needed a lot of work. If it needed work, that was fine with me. I relished the opportunity. I was less willing to live further out, and I would not even consider some of the more troublesome neighborhoods because it would be just me and Milla living there. We had the dogs, but there was only so much they could do, and I didn’t want them to get hurt either. Often a neighborhood looked fine on the outside, but Portland had been experiencing an influx of Russian and Mexican gangs. No thanks.

After only a few weeks of searching, I found my house. Built in 1920, it needed tons of cosmetic work, but was structurally quite sound. With a few changes, the house would be perfect for us. It also had a lovely, floral back yard, as well as a side yard already fenced and lined with bark chips for the dogs. The support beams under the eaves were carved with loops and bows. This house was charming and perfect, so I bought it.

I had major plans for renovating and started immediately, before we even moved in. Bjorn moved to the house as well, and the two of us demolished the kitchen. It was the only place in the house that was truly awful. The counters were covered with tiny brown tiles that had not been installed properly. There was more grout than tile and each swipe of a sponge brought up a handful of dust, dirt, and goo.

In the four and a half years I lived in that house, I made many changes:  I installed an entirely new kitchen, put in a new kitchen window with rising double panes, to replace the former single-paned window that did not open at all, a travesty in a kitchen. I replaced the floors in the kitchen with new tiles. I removed the ugly, industrial grey tile in the bathroom, covering the floor with small, square white tiles. I removed a wall in the second room that opened into a small room with no real purpose, creating one giant bedroom. In that larger room, I installed a closet and discovered space above the stairs in the wall and turned it into a cupboard, using period knobs for the doors. I built a wall along the far side of the bigger second room, then opened a door into the master bedroom, creating a walk-in closet in a room that formerly had no closet at all.

While making the place for the door, I discovered newspapers from 1925 under the wallpaper advertising “Paris Frocks for Only $25.99!” I moved the front door from the master bedroom back into the living room where it belonged. I designed and installed built-in bookshelves in the living room, matching the woodwork at the base and along the top edge with the woodwork throughout the house. I painted the entire interior of the house with many lovely colors. I replaced all the light fixtures with period fixtures, and replaced a couple of windows that were no longer functional.

I also removed the jungle that covered the front of the house and built a rock wall, then covered everything in flowers. This was quite a chore as there was a 75-foot tall camellia bush that was so close to the house, it hung over the roof. I advertised the bush for free to anyone who would come and remove it. Two men arrived with a trailer and tools and excavated it over the course of a week, before driving it away on a flatbed trailer. There were also many scrubby azaleas who found new homes via the internet. For some reason, someone had installed sheep fencing in the front yard between the camellia and the maple tree near the sidewalk. Twisted and rusting, it was covered in ivy that used the sheep fencing as a ladder to higher reaches in the trees. All of it I removed and replaced with grass and smaller shrubs and flowers. I built a rock wall along the sidewalk, dragging the stones in three carloads from a rock quarry nearby.

Every job was done with the period of the house in mind, and in the end, it was charming and engaging. It was the perfect project. I did not have the money to hire contractors for most of the work, and therefore I did it all myself. I hired an electrician to replace the wiring and update that, and my dad installed the new bathtub fixtures and the front door, but everything else was done with my own two hands. It was a lot of work, but I loved that house and loved the end result.

Four months after I bought the house, Bjorn was offered a job in Florida doing exactly the kind of engineering he wanted, designing medical implants. Within three weeks of the job offer, he packed his truck and set off, leaving me alone with our daughter and the dogs.

On the one hand, I was relieved to let go of the tension between us. On the other, life became much more difficult. First there was the house. Even though it was a project of love, it was still a lot of work, especially for a full-time, working single mother. Milla was attending kindergarten and would go to aftercare there after school. Because of the hours at aftercare, I had to cut back one hour per day at the office, leaving at 5 instead of 6. This did not change my workload, only the hours I sat in the office doing it. In spite of the fact that the workload remained unchanged, the firm cut my pay, which I could barely afford.

I was also now the only person available to ensure Autumn was given her daily insulin shots twice every day. No matter where I was in the evening, I had to plan to ensure Autumn was medicated. I chose 7:15 as the time for these shots because it was early enough in the morning that I had not yet left for work, late enough that it would not be horrible to wake up to on the weekend, and early enough in the evenings that I could still do something after.

At times, I would take her with me in the car if I had to be somewhere and could not be home to give her a shot, a cooler in tow for the insulin, which had to be refrigerated. I also had to be careful not to shake the bottle because this could cause the insulin to become unstable and unusable.

In spite of the difficulties, we managed and forged a comfortable routine. Six months after Bjorn moved away, I left the firm and started my own practice. This brought its own stresses, but it was still easier setting my own time and getting work done at odd hours. I was freed up to attend more events at Milla’s school during the day, and it gave me much more flexibility for dealing with Autumn.

Over the next year, we settled into our lives with Bjorn far away and working at my new practice. I worked on the house on weekends and some afternoons during the week.

I took both dogs out of the house nearly every day. We lived near a dog park with a wide field where the dogs could run without leashes. Even on wet days, I would go and let them romp in the muddy grass, then wipe their paws before having them ride in the back of the car to home.

Autumn couldn’t get up into the car by herself, so I would lift her and get her situated. She would ride, watching the world go by, tongue lolling, ears perked, her happy face on. She loved car rides. Molly didn’t mind the car, but she preferred curling up in the corner or on the back seat.

Autumn actually didn’t seem to notice the poking of the needle into the skin at the back of her neck anymore. Every shot was followed immediately by food and she soon figured out that my shuffling around in the refrigerator door meant food was soon to be had, so she would wait right at my heels, eyes up, perky and expectant, waiting for that shot.

Needles. The funny thing about giving a shot is that the first few times you do it, it’s terrifying to think of the pain it’s inflicting. After you’ve given fifty shots, then a hundred, then several hundred, you can do it in your sleep. I suppose it’s like that for anything new. There is just something rather odd about doing something that becomes so familiar that is actually poking into another living body.

I will never forget those little orange tipped needles. I bought them in bulk from various pharmacy stores. I got to know where the deals were. The shocking thing was the difference in price from one store to the next, for the exact same needles of the same brand. It gave me some insight into what diabetics or others with chronic medical conditions face every day. The same box of needles would be ten dollars less than the cost somewhere else. The cheapest I found were about $17 for a hundred needles (they had to be thrown away after each use), but I found places that sold them for $33 for an identical box. I had the benefit of being strong and fit, so driving to another store where I knew the needles were cheaper was a fairly simple proposition. I could see how a mostly housebound senior would have a lot of difficulty shopping around.

After administering shots to Autumn twice daily for over a year, giving the shots became mundane and completely routine. On weekend mornings, I would wake up, stumble to the kitchen, roll the bottle in my hands, pull the shot, give it to her, feed her, and head back to bed, all in about three minutes flat. I don’t think I even really woke up. All the dogs knew the wake-up time, and if for some reason there was no alarm and I failed to awaken, one of them was guaranteed to rouse me from sleep.

One morning on a Saturday, I staggered into the kitchen, pulled the shot, and the phone rang. I squinted at the caller id, wondering sluggishly who would call at 7 a.m.on a Saturday. There was no way I could read the screen. I am ridiculously farsighted and my eyes were full of sleep.

I answered the call. It was Officer So-and-So from the Milwaukie Police Department. Did I have a golden colored dog? I informed him that I did, looking blindly around the kitchen for the neck I’d planned to shove a needle into not thirty seconds previously.

The officer went on to say that a yellow dog had been seen “wandering in a daze” down the road. She looked lost and starving. He responded to the call and found my number on her collar. He offered to bring her to me.

I explained that she had diabetes and that this was why she was so thin, that I had no idea she was out, that she was an escape artist of the highest order, and that I would be most grateful if he returned her to me. And please, I begged, don’t feed her anything.

Five minutes later, Autumn walked in the door, that diabetic-glazed look in her eye. I poked the shot into her neck, barely glancing down, I had done it so many times. I talked to the officer for ten more minutes, telling him Autumn’s story and about her magical ability to get out of the yard, and thanked him profusely as he drove off. I did not mention that I had failed to replace her underground fence collar after her bath the previous evening.

I was grateful Autumn was back, but I was really glad I did not get a “Dog at Large” ticket. Those can be expensive. I knew. Autumn had given them to me before. Even though the dog yard was fenced with underground wiring, it did not guard against escapes out the front or back doors, and I lived with a 5-year-old who had a habit of running out without making sure the latch had clicked. Autumn knew this and followed Milla around, waiting for any opportunity to slip out the door.

I was also extremely grateful he had not given her any food. On one occasion when Autumn escaped, a well-meaning yet misguided neighbor fed her two huge bowls of food before she keeled over in the woman’s kitchen. Why she waited to call me until after giving my dog a meal I’ll never know. Maybe she thought I was starving her on purpose or something, as if someone who was careful enough to tag a dog would be careless enough not to feed it.

In any case, when I went to retrieve Autumn from the neighbor’s house, the lady started to scold me for letting my dog get so thin, but I cut her off and explained that she had a chronic illness and that the food she gave her could have killed her, which is why she had keeled over.

I wanted to scream, “Why would you feed someone else’s dog, you idiot?” but did not. She didn’t know, and she thought she was helping. I used my glucose monitor to check Autumn’s blood. I ran the test, gave her an insulin shot, and she was back to normal within a half an hour. After that incident I went to the pet store and bought a tag that read, “I have a disease. DO NOT FEED ME!”

The glucose meter was a godsend and really the only part of all the illness-related activities Autumn endured that she seemed really to abhor. Other than testing urine, it was the best way for me to get a reading on Autumn’s insulin levels, especially if she had broken into the trash cupboard and found something to eat, or escaped and gotten something.

We had a strict food routine in the house whereby any food-based garbage went into the compost bucket, which was kept on a high shelf with a lid. When it was full it went into the compost bin out back, away from the dog area. The rest of our waste was separated into two containers, one for trash and the other for recycling. Autumn loved to get into the trash version and lick through whatever was in there, such as butter wrappers or soiled plastic wrap. Once the new cabinets were installed in the kitchen, I put in a double-garbage-can rack, placing the recycling in the front bin, and the trash in the back. There was a childproof latch on the door. When that was closed and the trash in the back, she was not able to get into it. However, Milla had a knack for leaving the door open and the whole thing pulled out. Autumn would then remove the can from the rack and go through whatever was inside.

One time shortly after we moved in, I arrived home to discover that Autumn had gnawed through the bottom corner of one of the kitchen boxes sitting stacked and unpacked on the kitchen floor. She had discovered all the dry good baking items and ate them. Molly had joined in on that escapade. I caught her because I discovered powdered sugar on her ears and muzzle. Naughty things.

Another time both dogs managed to get onto the table and eat a pan of chocolate cake.  I had heard the warnings that chocolate supposedly killed dogs, but this simply was not the case.  I read somewhere that it was only dogs who had an allergy that had to worry about eating it, but who wants to be the person making this discovery the first time?  It makes sense to keep the chocolate away just in case your dog is the one who is allergic.

However, potential life-threatening allergies did not stop my dogs from climbing on the table and eating an entire chocolate cake.  When Dan and I lived at his parent’s, Murphee climbed onto the island in the kitchen and ate a pan of brownies.  In all cases the worst thing that happened was the dogs came away with some really nasty gas, and we no longer had any dessert.  Apparently none of them suffered from chocolate allergy.

The glucose meter was a big help for these non-diabetic dog food eating sprees. However, in order to use the meter, I had to obtain a drop of Autumn’s blood. One end of the meter had a sharp lancet with which to pierce her skin. At the other end of the meter was a test strip onto which I smeared the blood to obtain a glucose reading. Autumn hated the pricking part. There was not any part of her body where it was easy to get a blood sample, mainly because she was furry. Only her lips and the pads of her paws were bare. The lips had to hurt; she yelped whenever I tried drawing blood from them, the skin was so thin and soft. But the pads of her paws were thick and extremely difficult to pierce enough to get blood. When I was able to poke them hard enough, it usually caused way more bleeding than was necessary for the meter, and this made her cry out as well. Digging that deep into the pads was painful. For this reason I only used the test when I knew she had eaten something she should not have. In addition the test strips were really expensive, so I didn’t want to use them up quickly. Humans would use the meters daily, because they could control their levels fairly precisely with diet. Autumn could only eat her prescription diabetic dog food, so it wasn’t necessary to monitor all the time.

Autumn was always so patient with the medical interventions she had to endure, but the lancets and subsequent rubbings were the one procedure for which she refused to sit still or comply. She would pull away and yelp, making it that much more difficult to get blood. But she was a dog – as much as I told her it would all be over soon, she just couldn’t get it. Sometimes I would be frustrated because she had gotten into something and made a huge mess, and then wouldn’t sit still so I could check her blood.

“If you wouldn’t get into anything, I wouldn’t have to do this,” I would scold, obviously more for my benefit than for hers.

I would read the meter and if the levels were high, give her more insulin. On occasion, the meter simply read HI, in its blocky digital letters. This meant her glucose levels were so high, they were off the chart, and insulin was required immediately.

Within a few months after her diagnosis, I noticed tiny white flecks in Autumn’s eyes. The flecks increased as the weeks progressed. I went online and discovered that Autumn was developing diabetic cataracts, a condition that is extremely common. I read somewhere that 75% of dogs with diabetes develop cataracts, and that their presence did not necessarily imply glucose levels were not under control.

In a normal eye, the lens is round, clear, and hard. It is connected by fibers that move so the eye can focus. It is enclosed in a capsule and gets fluids from the eye. The lens does not have its own blood supply. One of the fluids the lens absorbs is glucose. If there is too much glucose, the excess is converted into the sugars sorbitol and fructose. Sorbitol and fructose pull water into the lens which makes the lens cloudy, and a cataract is formed.

Some dogs develop complete cataracts fairly quickly after their diagnosis. Autumn’s developed slowly in comparison to some of the stories I read, and her cataracts were never completely solidly white; they were slightly less opaque than that. However, a year after the diagnosis, she could not really see. She would tilt her head and look at me as if she were peeking out the side of her eye, trying to see around the cataract. A couple of times she ran into the doorframe around the back door, but she quickly adapted and learned where her world was at. I could have had the vet perform surgeries to remove the cataracts, but we discussed it and ruled it out. The cost was over $1000 per eye, and the average life span of a dog with diabetes is two years from diagnosis. Even if Autumn lived another three years, the result did not justify the expense or the upheaval of a surgery. Blind dogs adapt quite well to living without sight, and Autumn was no exception.

After Autumn had been living with diabetes for nearly two years, she was almost completely blind, but she was lively. I would take her to the dog park and throw frisbees and sticks for her. I would set her up, touching her muzzle with whatever I was throwing, then guiding her head in the direction of my toss. Autumn would head out and look until she found what I’d thrown. Her sense of smell was fully intact, and she would find anything, no matter how far I had thrown it, as long as I pointed her in the right direction. She loved the game, turning and running right back to me to throw again, in that familiar trot she had inherited from Cody. She wore out easily though, and would lie down to shred the stick after only three or four passes letting me know she had had enough.

Read Autumn — Chapter 16

Autumn — Chapter 14

Read Autumn — Chapter 13

I remember the color of the light in the room the night Autumn first tried to jump on my bed and failed, golden yellow, soft, and warm. It was late and we were getting ready for bed. I was already in bed, reading. Autumn usually came and asked if she could lie at the foot of the bed. In the middle of the night, she did not ask, just jumped up on the bed, curling up at our feet, or coming to the head where even in sleep I would lift the covers for her to clamber to the bottom near my feet. But in the evenings, she pretended to ask before coming up.

That night, Milla was snuggled next to me in the warm down comforter. I was sitting upright, my book propped on my knees. Autumn came over and made an attempt to jump on the bed. She could not make it. She tried again. Foiled again. Finally I arose and put her on the bed. Must be her hips, I thought, and thought nothing more of it.

Over the next several days, she appeared to gradually deteriorate before our eyes. As October closed and November opened, she lost weight and strength. She seemed also to have another bladder infection and drank water excessively.

With interstitial cystitis, Autumn always drank more than the other dogs. I thought this was what was going on, that she was having an exceptionally bad bout of interstitial cystitis, and it was causing her to lose weight, but I thought she should still go to the vet. Again. I made the necessary appointment and three weeks after her first failed attempt to jump on the bed, I took her in to see the doctor.

She had lost seventeen pounds. I could tell the vet was very worried. He wanted to run a number of tests, but thought cancer might be the cause. He could see no other major possibility for the dramatic decline in weight. There was the possibility of diabetes mellitus, he suggested, but I thought this unlikely because she had tested negative for it before. Cushing’s also, but this had also been negative. He offered to run a battery of blood tests to start. If the results from the first set of tests were negative, he would run a second set. Then a third. We would continue testing until we figured out what was happening.

I handed Autumn’s leash to the doctor so he could take her back to the lab. She was not happy and leaned her head towards me, pulling the leash away from the doctor. I pet her head and kissed her and told her everything would be fine. She kept pulling towards me as the doctor led her away. How many times in her life had I watched her disappear behind a door in a veterinarian’s office? How many times did watching the scene cause my heart to constrict and tears of anguish to form behind my eyes? It did not matter how often I had experienced this, my heart always ached as she was led away from me.

I sat in the sterile waiting room of the doctor’s office, staring at the mismatched tiles beneath my shoes. I liked this doctor. He was not Dr. Fletcher, but no one could be him to me. Yet this doctor was kind and honest, and he explained things to me as if I had a brain. The biggest problem with the clinic was that it was in a town about fifteen miles from our home, so trips there were a bit out of the way.

In the waiting area was a giant cage with three kittens in it. Milla was thrilled with these kittens and played with them as we waited. A fat, orange, office cat came through and asked to be petted. It was not very friendly though, and scratched if you rubbed it too long, so Milla left it in favor of the kittens.

Milla ran through the lobby, her blonde curls bouncing, babbling and telling me about the babies. One of the kittens was a light grey color, its fur almost bluish. “See the blue kitty?” she asked me, pointing to it.

“That kitty is blue!” I responded, reaching out to give her a hug. She let me snuggle her for only a moment before running off to the other side of the counter, searching again for the scratching cat.

A half hour later, the door through which the doctor had taken Autumn swung open and the doctor stepped through. His diagnosis was quick:  Autumn had diabetes mellitus.

Diabetes mellitus, also known as impaired glucose homeostasis, is a group of metabolic disorders with one common manifestation:  hyperglycemia. Chronic hyperglycemia causes damage to the eyes, kidneys, nerves, heart and blood vessels. It is a horrible disease and because of the manner in which it keeps the patient from absorbing food, causes gradual starvation. It results from defects in insulin secretion, or action, or both.

The disease was first identified in the ancient world as a disease associated with “sweet urine” and excessive muscle loss. The elevated levels of blood glucose cause the glucose to build up in the urine. Blood glucose levels are normally controlled by insulin, a hormone produced by the pancreas, which lowers the blood glucose level. When the blood glucose elevates (for example, after eating food), insulin is released from the pancreas to normalize the glucose level. In patients with diabetes, the absence or insufficient production of insulin causes hyperglycemia. Basically, diabetics have too many sugars in their blood and no way to filter them out. It is a chronic medical condition, meaning that although it can be controlled, it lasts a lifetime. And Autumn had it. Little did I realize how much this diagnosis would drastically change our lives.

Years after all of this, I came to believe that the medical problems Autumn experienced arose from problems with her adrenal glands.  At the time Autumn was alive, no one really knew what caused interstitial cystitis, but I’ve learned that recent research shows a link to adrenal malfunction. All along the doctors thought she had Cushing’s disease, although she never tested positive for it. And diabetes is one of the symptoms of a long-term Cushing’s dog. Considering Cushing’s is an adrenal malfunction and Autumn’s diseases were all manifestations of adrenal malfunction, I think it’s a safe assumption that this gland did not work properly for her, or else hers was covered in tumors, causing it to keep from doing its job.

The doctor started Autumn on low doses of insulin twice daily. He also wanted us to change her food to a prescription version for diabetics.

“What about her IC?” I queried?

“IC won’t kill her,” he answered. “Diabetes can and will. You will want to do everything you can to lengthen her life span and make her as comfortable as possible during that time. If she eats the wrong food, she could get really sick because she her body cannot filter out the sugars. This can cause all kinds of problems, from blindness to heart failure.”

I got it. Autumn would have to eat what she had to in order to survive the diabetes, IC be damned.

At first, it was somewhat of a struggle to settle into the routine of taking care of a diabetic dog. It took several trips to the vet to get her insulin levels right. We had started her on one type of dog food that she would not eat, probably because it tasted like sawdust, and kind of looked like it too. None of the dogs would eat it. I tried a couple of other brands before I found something she would eat. All of these dog foods were prescription foods and exorbitantly expensive. It was frustrating to buy a bag of dog food that cost nearly one-hundred dollars for a twenty pound bag, only to have every canine in our house turn its nose up at it.

I also had to concern myself with the ingredients of whatever dog food because certain of them would trigger IC episodes. Even though diabetes trumped IC in determining what would land on Autumn’s plate, that didn’t mean I would choose the worst of them and end up causing her unnecessary pain.

It was a struggle to figure out how to manage the diabetes. Because she would not eat most of the foods I would buy, Autumn would either tear down the house getting into trash or escape and go eat someone else’s. This led to several diabetic episodes where Autumn would escape, then wander home, glassy-eyed and practically catatonic.

At the time of her diagnosis, we were living in the country suburb where all the houses looked exactly the same. Shortly after purchasing the house, we installed landscaping and whatnot for the side and back yards. While doing this, we decided to add a sprinkler system to the entire property. Then we fenced a special side yard just for the dogs. Ever since we owned Poppy we had used dog doors to allow the dogs to go out to relieve themselves. These had proved to be a godsend when Autumn starting having bladder troubles. If there was a chance she could make it outside, she certainly tried.

In the new house, we installed dog doors into the garage and out to the doggy yard. This yard ran the entire length of the house, and was fenced on two sides by cedar plank fencing five feet tall. We then installed chain link fencing between the dog yard and our back yard. We placed river rock up the length of one side of the yard, and grass on the other, with paver bricks between the two and along the base of all the fences. The bricks under the fences were fixed into place with cement. Our thinking was that this would prevent Autumn from being able to dig out and under the fence. We thought the cedar planks, placed side by side, would prevent her from squeezing out. Same with the chain link. Basically, this fence was a dog fortress from which we believed she would never escape.

We were wrong. First, Autumn removed the boards from the cedar plank fencing. We nailed it back up and then nailed boards along the base on the outside. She then removed a corner of the chain link fence. This blew our minds. Her teeth in front were all broken in half from ripping off boards and fencing. Once we repaired that hole, she started in on the brick pavers under the fences.

This was the last straw. After Autumn tore a hole in the pavers and cedar fencing, escaping into the neighborhood and getting into someone’s trash, then coming home stoned on blood sugar, I had had enough. I immediately got into my car, drove to the pet store, and bought an underground electric fence, the kind with collars that shocked the dog if it went near it.

For years I had resisted these kinds of containment systems. I thought they were cruel, shocking the poor dog in the neck, but this was ridiculous. A shock was less traumatic than being smashed by a car.

We installed our fence and sent the dogs out into the yard. We set the range on the wire to two feet. This meant that four feet out from the fence, the collar would start beeping. As the dogs moved closer to the wire, the beeping became louder and faster, more insistent. Then, at two feet out from the wire, the collar gave them a shock.

It worked. It worked so amazingly well, I wished I had installed it years earlier. After two or three shocks, all the dogs stopped going near the fence the second they heard the beeps. Autumn would go to the faster beeps, but then she would stop. She was no dummy.

I no longer thought the fences were cruel. It kept my dog contained and out of the way of cars and other dangers lurking about in the big, bad world. It also kept her from getting out and into food that would cause her to get sicker.

All of the other dogs gradually figured out where the line of the fence was at and never even waited for the beep. They stayed away. When I bought a new house less than a year later, I installed the fence in the dog run area there, and it worked then too, to the point that neither of the other dogs needed to wear the shock collar when they went outside.

It was never this way with Autumn. If she did not wear that collar, she escaped, no exceptions. But she did respect the collar and would not risk shocking herself to get out of the yard ever again.

One major plus to managing the fence situation was that I was able to stabilize Autumn’s insulin injections. Once her blood sugar stopped fluctuating because her food intake was controlled, it was easier to figure out where it needed to be and to maintain its levels.

One rainy Sunday afternoon several months after her diagnosis, but before we installed the underground fence, Autumn escaped and got into something, causing a diabetic episode. These episodes scared me. Autumn would return from wherever she had run off to, listless, her eyes staring off into space. I called it her sugar coma.

It was bound to happen that Autumn would get into something on a day when the vet was not open. She didn’t schedule her medical issues around the hours our vet was working. The result was that I ended up driving her into Portland to a corporate vet’s office in a national pet store chain. I had resisted these offices because I fundamentally disagreed with many of their policies. They tried to sell nearly everyone “prevention plans,” claiming the services cost less with the plan, but they charged more for those services in the first place, and seemed only to ensure the corporation would line its pockets on a regular basis, especially since as a large buyer, it most likely got discounts on many of the products. I also knew from my few vet friends that the wages paid to vets were low and the hours unstable. Overall, as is typical in many such conglomerates, profit drove its motives above all else, and I didn’t like that.

That said, the nice thing about such offices is that they are open many more hours than most smaller establishments. The vet we had been going to was open on Saturday, but not on Sunday. If we needed care on Sunday, they directed us to the emergency vet clinics in downtown Portland or downtown Salem, as they had when we thought Autumn’s stomach was twisted. It was one thing to pay an exorbitant price for such a visit at 3 in the morning, it was quite another in the middle of the day on a Sunday.

I dragged Autumn in to have her hooked up to an IV and get her blood sugars stabilized. After running all the tests, the clinic didn’t even bother trying to sell me their plan. They knew they would make way more money on me just based on Autumn’s many problems.

Yet I loved the doctor. His name was Dr. Horner and he was the closest thing to Dr. Fletcher I had found yet. Because I had read so much medical literature, and spent many hours discussing these issues with Dr. Fletcher, I was well versed in a lot of what was going on with Autumn metabolically. Dr. Horner seemed to sense this, and discussed her case with me at a precise, technical level. He was also extremely kind, and gentle with my dog. Over the years I have taken many animals to see Dr. Horner, and it doesn’t matter if it’s a rat, or a dog, or a lizard, he is always compassionate in his handling of animals.

While I had a good working relationship with the vet we had been using, his office was fifteen miles southwest of our house, towards Salem in a town called Woodburn. Not much later, I moved to Portland, and the new house was even further from the doctor in Woodburn. Once we moved, it was easy to slip into using Dr. Horner as our primary vet rather than the office that was so far away.

Read Autumn — Chapter 15

Autumn — Chapter 12

Read Autumn — Chapter 11

Summers in the West Linn house were extremely pleasant. The enormous cherry tree in the front yard kept the house nearly fully shaded. There were windows covering two entire walls in the living room, and a full corner of our bedroom. A large picture window opened onto the dining room. In warm months, we opened all these windows, allowing a gentle breeze to move throughout the rooms. In combination with the shade of the cherry tree, the effect was comfortable and gratifying.

Because of the grandfather clause allowing livestock on the property, we owned two ducks and had brought my old, childhood, bay pony named Lady to the house from my parent’s. Swaybacked and ancient, she kept the grass behind the house mowed and blackberry vines in check. I set up a hammock between two trees in the backyard, and would lie between them with a book while Milla roamed the yard with the dogs and Lady.

I was lying in this hammock the afternoon of Autumn’s bladder scope, waiting for the call from the vet telling us to come and bring her home and, I hoped, some diagnosis.

Finally, at about three in the afternoon, the specialist’s office called to say Autumn was ready to go home. The receptionist informed me that the specialist would call me to discuss the case.

I gathered up my book and hefted myself out of the hammock, pulled Milla from the sandbox, wiping sand from her hands and knees, and headed through the house and out to the car. The specialist’s office was in another Portland suburb, about twenty minutes from our house.

When I arrived at the specialist’s office, Autumn was woozy, but none the worse for wear from her experience. The office told me the specialist would call me later with the results. Seriously? Dang, this was taking a long time.

On the drive home, my mobile phone rang. I plugged in my corded headphones and answered. It was the specialist.

“Your dog’s bladder looked like world war three,” she told me soberly. “I’ve never seen anything like it. The inside of her bladder wall was a mess. I cleaned some off some of the loose tissue, so she should not have any further bleeding.”

She went on to say that there wasn’t a lot of information out there about why this happened. The doctor didn’t know the exact cause of Autumn’s troubles. She said in cases like this, it was believed that stress brought it on. Antibiotics would not help, and actually could make it worse, so she wanted me to stop giving Autumn antibiotics. The good news was that there was no evidence of cancer, and no indication that anything was going on that would kill her. The bad news was there wasn’t much more that she could tell me, and there was not a lot that could be done.

I thanked her and hung up the phone, then called Dr. Fletcher and left him a message, and called Debbie and Bjorn. I was so relieved that the diagnosis wasn’t death.

Over the next several years, Autumn had several other similar such bleeding bladder episodes, and they all occurred when she was stressed, even when the stress was good. One such incident occurred when I took Milla and the dogs for a weekend at the beach. We rented an oceanfront motel cabin with a hot tub in the room.

Autumn adored the beach. She would run herself ragged, chase sea birds, and gambol and play in the edge of the ocean. Most of the places we liked to visit along the Oregon coast were located at the mouths of creeks or streams emptying into the sea. Autumn would race back and forth through these waterways, soaking herself and anyone nearby.

In spite of the fact that Autumn loved the beach, her bladder issue came back with full force while we were there. Luckily the motel room was covered in synthetic wood flooring, making it easy to clean her accidents, but I could not take her anywhere in the car, and liberally covered the seats with towels before heading home in case she leaked blood or urine. I gave Autumn one of the painkillers prescribed by the vet because the episodes were painful, and simply waited for it to pass.

A couple of years after Autumn was scoped, and after many bleeding bladder episodes, I was visiting my mom’s house. My mom is something of a magazine addict, and keeps dozens of them around the house and in the bathroom at any given time.

While there, I picked up a Lady’s Home Journal and thumbed through it when one of the headlines caught my eye. It said something like “Bladder Problems Nearly Ended my Life,” or some such thing so dramatic. I read through the article and became increasingly excited.

The author of the article had experienced what seemed to be bladder infection after bladder infection. The infections were extremely painful, and grew worse, not better, with antibiotics. She often leaked blood. Nothing helped, and as time wore on, she lost her job and was in nearly constant pain. After years of struggle and torment, a doctor scoped her bladder and saw that the inside was shredded, exactly as the vet had described Autumn’s. It was only after all of this that the woman was diagnosed with a condition called interstitial cystitis, often called IC.

Finally, I too had a name for Autumn’s condition.

The article said that there was no cure for IC. In some cases in humans surgery could remove some of the damage to the bladder wall, but these surgeries were rare, and I knew in Autumn’s case we could probably never afford it, even if it were possible. It also stated that the best way to maintain the condition was through diet. Certain foods were triggers that could make the condition worse. And, as I had already determined from trial and error, stress was one of the biggest culprits in causing an episode.

The article referenced a website for humans suffering from IC. Later that evening after I returned home, I found the site and read everything there, and then searched further, thrilled to have found something that matched Autumn’s situation exactly. I also discovered what I had been figuring out by accident: bland foods were best, as was minimizing stress.

I called Dr. Fletcher and told him what I found and how. He knew of IC because he said it was common in cats. He had recently read a journal article about it, and reiterated that diet was the best means of maintenance. He also pointed out that studies showed that the binders in commercially prepared foods were one of the worst things for Autumn to eat, and suggested I look at natural foods to help with her disorder.

After reading everything I could get my hands on about IC and talking to Dr. Fletcher, I began purchasing 10 pound tubes of ground turkey and 20 pound bags of rice and cooking Autumn’s dinner every night. We had experimented with this diet before in an effort to calm Poppy’s skin problems, but it had not helped. However, I was willing to try it if it would help Autumn to feel better. Everything I read about IC said the episodes were very painful. I could only imagine how this felt for an animal who could not describe for me how she was feeling.

Of all the discoveries I made when Autumn was ill, the revelation that her bladder issue had a name and diagnosis was the most gratifying. Finally I had a name for the condition. Finally I had a list of triggers that made it worse. Finally, though nominal, I had some sense of how to manage it. I could actually make a difference and help her live more comfortably. This made all our lives more manageable in the long run. It wasn’t a perfect situation, but now I understood Autumn’s issues and was able to control things for the most part, which was a huge relief.

Read Autumn — Chapter 13

Booby Squishing

Today I went in for my annual booby squishing appointment.  Having been a “victim” of breast cancer, I have to have them every year.  Compared to the one where the cancer was initially discovered, these are a cake walk.  In that initial visit, the doctors could see some specks at the top of the film and therefore assumed the specks were in my armpit.  They spent the next hour and a half attempting to squish my skinny shoulder into the mammogram machine.  It did not work.  It hurt.  Finally they figured out that it was possible that the specks could be on the other side of my breast, towards the center of my chest.  One try at that location and voila!  Pay dirt.  A lesson learned that day that has since been reiterated is that mammograms are easier if one is fleshier.  There is more flesh to grab in the flat, plastic jaws.

Today’s mammogram was relatively simple.  I knew from previous visits that mammogram appointments mean waiting around, so I brought some knitting. This visit was in the new “Safeway Cancer Center.”  I hate it when medical facilities or sporting facilities or any facility that isn’t what is being used is named for some corporation.  If I go into a grocery store and it is called Safeway, fine.  If I go into an office supply store and it is called Staples, so be it.  However, I don’t want to go somewhere that is going to squish my boobs and have it called Safeway.  It’s too much of a non-sequitur.  But as is often the case, I digress.

The new booby squishing center was clearly designed with the needs of women in mind.  In fact, it looked like they got together a focus group from Lifetime television and Oprah to create a calm, breathable space, in calm, mellow colors, with calm, earthy tones.  All of this is spoken in a calm, monotone voice.  One enters a lovely, spacious lobby with a fountain.  Let the deep breathing and Ohms begin.  You are escorted into a high-ceilinged, glass-enclosed waiting area.  Nearly immediately you are called back into the “guest space” –a nice name for another waiting room.  But wait, there’s more!  This space is lavishly furnished with low-slung chairs and sofas.  Surrounding this loungey place are all the doors to the little rooms where one leaves one’s top attire and personal belongings in a locker.  Each “guest” has a personal escort to show them their own special dressing room.  This person then informs them that there is coffee and tea in the corner for them while they wait.  Dutifully, the guests remove their top garments, lock all of it in the specially-designed wooden locker (nothing like the banging metal contraption I had in high school, these are sleek, wooden, and smell brand-new).  One exits the personal dressing room to wait in the low-slung chairs.  Calm, watery, pan flute music fills the air, further adding to the illusion that one is away at a spa, awaiting a massage and relaxation, rather than waiting to have one’s boobs squashed beyond recognition.  All of it is an illusion to distract us from the fact we are squishing our boobs to catch cancer.  A couple of the women, when they spoke, betrayed in their quivering voices the fear that this could be their fate. I wanted to let them know that sometimes, it really isn’t all that bad, even when the mammogram is positive, but I remained quiet, focusing on my knitting.

For me, nearly immediately upon sitting after changing out of my top clothes, my escort came to take me back for the actual booby squishing.  She performed her duties, creating the ethereal, opaque half moons from my breasts.  I find it intriguing that mammogram photos are so moon-like when the moon has long been considered the planetary body for women.

I had a mammogram a year ago.  At that time, Isabel was about three months old.  When the plastic plate slid into place on the top of my right breast, milk squirted out in about five different directions.  I loved that.  It seems so appropriate that my gland was doing what it was supposed to while taking the photos.  Today, my breast was emptier, Isabel having just supped shortly prior to my appointment.  No milk came out at all.  When no milk flowed, I realized I actually had hoped that it would.

After the photo-taking, my mammogram technician escorted me back to the waiting area.  I gathered up my knitting, grabbed a cup of tea, and waited. And waited some more.  During this time, a dozen women came through in the same pattern.  The escort brought them in, showed them their dressing room, they sat for a moment ensconced in their pond-green dressing gown, then were called away, only to return shortly to wait and wait. In the meantime, some who had been there were called into their dressing room for a “private discussion.”  I say private in quotes because we could all hear what was being said, that the films were clear and we will see you next year.

I expected this, that my films would be clear.  Then I thought for a moment, what if they’re not? What if they call me back to squish me some more?  I imagined me telling them that I knew something was up because this is what happened last time:  they called me back for more and more and more, flattening and pressing and prodding my flesh.  I imagined that if this were the case then 2011 would begin as awfully as so many of the last years have, and I wondered if this is how life would always be, and then I realized I was going a little off the loony end and returned back to the spa room with it’s trickling music, low light, and women in green gowns.

And no, they did not take me back for more squishing.  My escort called my name, called me to my dressing room, and let me know the films were fine and they would see me next year.  All was well.

I liked this place, this woman spa space for boob squishing. I could have sat there and knitted all day.  As I waited with the other women, the only thing missing was some womanly conversation.  If that had been present, the illusion would have been complete.  As it was, this missing piece kept it from being all it could have been, but still it was all right.  Let some grocery corporation pay to keep us from contemplating why it is exactly we’re hanging out with strangers and squishing our boobs in a modern day female communal space, creating moons and attempting to avert disaster.  Whatever works, right?

I’m the Poster Child for Public Healthcare

I was published on Huffington Post last week.  To see the original story, click here.  If you like it, please share on Facebook or twitter, and feel free to buzz me up.

I’m the Poster Child for Public Healthcare
by Lara M. Gardner

I am a poster child for public health. Why do I say this? Because I live in a state where there is a low-income, public healthcare option. When I was diagnosed with breast cancer, I was able to utilize this option for my treatment. It worked, and it worked extremely well.

Uninsured and unemployed after job-hunting for over a year in late 2006, I discovered a lump in my breast. The lump turned out to be benign, but the mammogram of that lump showed early breast cancer. The nurse-practitioner who ordered the mammogram knew about a federal program for treatment of breast and cervical cancers in low-income women. I applied for the program and was accepted for my mammogram and subsequent biopsy. Once the biopsy showed that I indeed had cancer, the Oregon Health Plan kicked in, along with the federal program, to treat my cancer.

The care I received was phenomenal. I was able to choose my doctors. My surgeon and oncologists were all brilliant, amazing physicians. All of the staff in every facility treated me with kindness and respect. Throughout the process I was a partner in my care, everyone explaining procedures at a level commensurate with my education and understanding. Never once was I made to feel like a second-class citizen because of my public health status. I completed radiation treatments and, because I take an estrogen-blocking drug, have continued on the public-health program.

As part of my care, I was required to pay $3 for doctor visits. I had two surgeries for a biopsy and lumpectomy, a needle biopsy, radiation, multiple mammograms, and attended countless doctor appointments with various practitioners. The only bills I ever received were for the $3 fees. Not once did I suffer through multiple bills, trying to sort out which my insurance company had paid, who had been billed, who was owed what. I was spared all of this thanks to public healthcare.

Since the healthcare debate has come to the fore over the last year, I have read and heard story after story of women with cancers like mine who were “covered” by private health insurance. Over and over, I have heard of the trauma and stress these women experienced at the hands of their insurance companies at the same time they were dealing with the pain, fear, and exhaustion of their illness. Each time I heard these stories, I felt grateful that I was covered by a public health plan.

Part of the health care debate has included the old canards about the Canadian and British health systems. “You can’t choose your doctor.” “You have to wait for months to get treated.” These claims have been widely discredited, and I saw nothing in my experience with American public healthcare that was lacking. I chose all of my doctors. I was served immediately.

I sincerely hope our legislators can get their act together and create a health plan that provides health care for every American so all of us can experience true and complete care, as I did. It can work. It does work. We all deserve nothing less.

Beached Whale

I’m just stuck, energetically, physically, mentally.  I think it’s pregnancy, but I’m not totally sure.  There have been so many changes in the last six months that could be attributable to this logjam.  However, I have experienced major changes before and not felt so inept and unable.  It’s weird having been a person with a quick mind and quick body turning into someone who has difficulty thinking of words and can’t just leap out of bed or a chair.  I feel like a beached whale, stuck here on shore, lying in the salt surf, seeing what was all around me, yet unable to do anything about it.

We recently took a trip back to Portland. While there, we ran around hither and thither, visiting and seeing family and friends.  In the past such a visit would have been delightful to me.  If there had been a free moment, I would have wanted to fill it.  This time, I was exhausted a third of the way into the trip.  A couple of times I just ran into a physical wall in the middle of the day.  I had to say Enough is enough! and go lie on the bed and take a nap.  Pregnancy was definitely the culprit there.

The first trimester of this pregnancy was a nightmare.  I suffered severe perinatal depression without knowing such a thing existed.  My boyfriend thought I was an alien, and wasn’t very supportive as a result.  I still looked like my normal self, but I was not the same person.  I overreacted to the smallest things.  I would sob and sob and sob for hours.  My brain completely fogged up.  I finally realized I was experiencing something physical, so I decided to do some research.  In the process I found Brooke Sheilds’s book on her experience with postpartum depression and discovered that a pregnant woman or one who has just given birth who has gone through an enormous amount of stress prior to the pregnancy is much more likely to suffer from depression.  Considering the level of stress in the years leading up to being pregnant, coupled with the stress of moving across the country, moving in with my new boyfriend, getting pregnant, moving away from Milla for the first time ever in her life, and I was a perfect candidate for peri or post natal depression.

Based on this information, I did further research and discovered that the leading expert on peri and post natal depression was based in New York, not far from where we live.  Her name is Dr. Margaret Spinelli.  She was conducting a study to determine whether counseling a pregnant woman to improve her interpersonal relationships would improve her depression and reduce the likelihood of it occurring after pregnancy.  I had a consultation with Dr. Spinelli and she admitted me into the study.  Since going, my moods have improved dramatically.  It also seemed to help just to know that I wasn’t actually going nuts but suffering from a physical response to being pregnant under stress, and to understand that the troubles in my relationship were making things worse.

I’m still waiting for my boyfriend to understand that my emotional reactions to most things are normal for a pregnant woman, and especially a woman with perinatal depression, but I feel better understanding that how I feel comes from a diagnosable source, one that will go away when my hormones settle down, and if they don’t, there is medication available to assist me.  Considering the level of improvement I’ve experienced without drugs, I am genuinely hoping to avoid that route completely.  I also make sure to keep my sugar intake to a minimum and exercise, because I definitely feel worse when I eat sugar or don’t exercise.

Even without perinatal depression, the physical demands of pregnancy aren’t much fun.  I did not like being pregnant with Milla.  This pregnancy is no exception.  When I was pregnant with Milla I would hear about women who said they never felt better that when they were pregnant.  My response to that was they must have felt pretty crappy the rest of their life!  I like having a clear brain.  I like having a lithe body.  I can’t wait to have the little baby out here so I can get off this beach and back into the ocean.

I Gave a Man an Apple

I gave a hungry man an apple yesterday and I keep thinking about it.  I don’t want to trivialize it, but I wanted to write about him.  I keep seeing him at the other end of the subway car gnawing the apple as if his life depended on it.  And maybe it did.  I thought of him this morning in my insomniac hours.  I thought about the homeless families I read about in the New York Times and I wanted to write and comment about what homelessness is, but that seems so boring and unlikely to change anything.  People read me, but no one is going to read what I have to say about homelessness and change anything.  I don’t know what would remove the image of that man from my brain.  I don’t know that I should remove that image.  I just keep thinking about it.  So many times I have sat on the subway car and a person comes on and says, Excuse me, Ladies and Gentlemen, apologizes, and then proceeds with their spiel.  So many times I have been slightly annoyed by the interruption, yet felt guilty at the same time.  I simultaneously realize how close to precarious is my own financial situation, yet I acknowledge that we are nowhere near completely homeless and there are people in our lives who would ensure true homelessness is a most unlikely possibility.  I know also how pitiful and useless would be the change in my pocket.  And honestly, I am slightly resentful at being asked even though it isn’t fair to feel this way.  So I do nothing.  But there have been times when I have had food, times before moving to New York, when I would give food to people asking for it.  This time I had an apple, he asked for food, why not?  He told his sad story and I handed him my apple, then thought nothing more of it until I looked up minutes later to see him devouring that apple like he hadn’t eaten in days.  It was ginormous and red and beautifully ripe, a sort of dream apple.  It makes me weep to think of his hunger, swallowing the pieces so quickly he could not have had time to enjoy much of its fragrant sweetness.  It makes me wonder what would happen if I ever gave into the urge I have had in the past to ask the person to sit down and talk to me.  Sometimes I am afraid because the person seems to be mentally ill. I don’t want to be screamed at.  Other times I just don’t do it.  I’ve never done it.  But the urge has been there over and over.  I have wanted to stop my car (back when I had and drove a car) and ask the person holding the sign What happened?  How did you get here? But I haven’t done it.  I wonder if I ever will.

I Have Been Sick

I have not been writing.  I have not been reading.  I have not been doing much of anything except lying in bed like a lump wishing I would feel better.  I try to do things.  I get up and go about for a bit, then I’m so sorry because of the overwhelming fatigue, nausea, and coughing.  It’s a travesty. I even got a fever, and that is extremely rare for me.  The last time I had a fever was fifteen years ago, and it put me in the hospital.  This time I just laid there like a dry stick, sucking on lozenges, popping Tylenol, dextromethorphan, and antihistamines, completely catatonic.  Yuck.

I’ve gotten some ideas.  Really, I have.  It’s possible to come up with some pretty interesting things to write about when one wakes up from coughing after the drugs have worn off at 3 in the morning.  But the thought of being upright to actually type some of these clever things into the computer is seriously more than I can manage.  I have to get up frequently to go to the bathroom because I’m trying to drown this thing (it’s not working).  Going to the bathroom is the extent of my energetic abilities.  It’s getting old, I can assure you.

I told Boyfriend today that I want him to buy some oranges because I’m going to try and kill it with vitamin C.  And some grapefruit.  Maybe if I eat a bunch of them every day I’ll kill the bad little viruses.  Plus I’ll eliminate any possibility of scurvy, and help keep the orange growers in business.  And grapefruit growers.  I’ll be doing my part.

I think it is evident from this post what my mind is capable of.  Today I took a couple dozen quizzes on facebook.  That also gives some indication of my potential mental capacity.  It’s like I’ve been working hard all week and my brain is fried.  I get the fried part, but it has not been because I have been working.  I did do some fun activities because Milla is home this week.  I went to the zoo, then came home and collapsed for 3 hours.  I went to the Statue of Liberty and Ellis Island, then came home and collapsed for 4 hours.  I went to the Union Square Farmer’s Market and almost threw up right there in front of all of the farmers.  Not fun.  Maybe all that running around is kind of like hard work and that is why I feel like I’ve been busting my ass all week.  I don’t know.  In any case, I hope I get over this soon.  I am sick of being sick.

Pitiful

It just makes me sick, those poor babies made ill by milk powder in China.  It reminds me of Nestle going into third world countries, telling the women to stop breastfeeding and to “use formula like western women,” all the while ignoring the fact that the water is unsafe to drink.  The result is a 50% infant mortality rate in these countries because the babies die from dysentery.  Now we have over 59,000 babies sickened and killed in China from drinking poisoned milk powder.

Fifty percent infant mortality rate.  59,000 sick and dying children.  All these giant numbers, all these sanitized words used to cover one salient fact:  some parent’s baby got really sick or died.  Each of those hurt or killed had a mom and dad who either had to sit up worrying about a sick baby or they lost a little baby they loved, not to mention the fact that these little kids had to suffer through sick stomachs, diarrhea, and vomiting.  Use sanitized words and it becomes so easy to forget that.

The other piece of this that strikes me is how truly sad it is that formula is fed to children instead of breastmilk.  I wrote a law review article calling for laws requiring employer accommodation of breastfeeding women.  For that article, I did extensive economic and medical research to back up my arguments.  The conclusion I drew was that breastfeeding saves lives and money.  We never should have switched to a system where it was not the norm.  Of course, money drove the trend on many levels.  Money, money, money.  Everyone wants it.  Everyone wants everyone else to think they have it.  Stupid decisions are made because of it, from the decision to make our babies sleep in other rooms to the decision to feed our children milk made from powder to prove we can afford it.  Later these decisions became the norm to the point where children who want to sleep with their parents are considered problems and babies drinking from mothers’ breasts is considered obscene.  No one questions why it started and what was normal for thousands of years becomes disgusting and unnatural.

I continue to marvel at the ridiculousness of human beings. We’re too smart for our own good.  Unfortunately, we aren’t smart enough to make milk that is as good as our own and the result is that it makes babies sick and kills them.  Pitiful.  Truly pitiful.

Ginormous Headache

My head hurts like nobody’s business, right at the base of my skull in the back.  I slept wrong.  I wear this eye pillow.  It was cockeyed, plus my regular down pillow had slipped under my shoulders, so I awoke basically balanced on this little lump of eye pillow and my skull screaming in pain.  Every time I turn my head, I see white light and feel like vomiting.  The only thing that alleviates the pain is to stab my thumb or a finger deep into the tight muscle.  Unfortunately because of the angle, my arm cannot twist that direction very well.  I’ve tried stretching my neck to the front and back, left and right, to no avail.  This is so much fun.  I think I’m going to have to try an NSAID, and I generally avoid taking medications for such things.  Only for this, I don’t care.  It hurts that much.

I don’t know why I”m blogging about this.  It’s kind of a ridiculous subject.  But I told myself I would write some blurb every morning and all I can think about right now is this headache and Vantucky.  I know.  It’s silly.  There is a town next to Portland called Vancouver.  Portlanders call it Vantucky.  The reasons for this are self-evident.  Boyfriend is going to Vantucky this morning and he called me on the way. For some reason, the word Vantucky is stuck in my head, along with the headache, and the lyrics to Judy Garland singing I’m Always Chasing Rainbows.  It’s quite a combination, I can assure you.  The song is getting annoying.  It’s been crawling around in my head, worming its way through the neurons for days now.  I’m ready to be rid of it.  I will have to listen to something else over and over and over in an effort to make it go away.  Then that song might get stuck, but at least it will be a different song.  Last week it was Cape Verdean Blues.  I did not mind that song being in my head.  It flittered around, showing up periodically.  I would hum bars of it here and there.  It did not sit insiduously on one line for hours like the chasing rainbows number.  No.  It was a pleasant visitor.  Chasing rainbows is like a houseguest who has overstayed her welcome, leaving empty dishes around the house with food stuck in them and her underwear in the bathroom with the crotch up.  I want her to leave me.

I’m off to take drugs to try to obliterate this headache, then I need to take my baby to school.  Hopefully by the time I return home the drugs will have kicked in and this pain will have been alleviated.  If not, I’ll poke a nail in my hand.  It would probably feel better than this wretched headache.

You Know It

Okay, gag and gross. The nasty sores on my elbow and chin/lip are staph infections. How disgusting is that? What is really weird is that one of the elbows began spontaneously healing. The other one turned gooey like the chin/lip. Yuck. I’m a mess. I got some more antibiotics though, different from the ones for my bladder, so we’ll knock out these bacteria too, and all the good bacteria in my colon, and then I’ll get another yeast infection and that will cause another bladder infection and on and on ad nauseum until time immemorial. I love it.

On a separate note, McCain calls himself an agent of change. I laughed out loud when I saw the headline. An agent of change? Yep, back to 1943, or hell, even 1929. We don’t need no dang new deal! We’ll all pretend we’re in the roaring twenties. Women will still be in the home making dozens of babies (high falutin hussies). Black people will still be in their place and segregated as God meant things to be. Mexicans will hopefully be in Mexico. Poor people will be out of sight where they belong. White men will rule. Corporations will be allowed the unfettered ability to polute as they see fit. It will be AWESOME! You go, McCain; change things back! We love ya!

I is Pore an Dum

Hi, I is Lara. I is kina dum. Why? I is pore. If you is pore, you is dum. I went to the docter today. That there docter gamme sum paper for them pills people. Them pills people woonent gimme them pills cuz I is on that Oregun Helth Plan. Itsa plan for people tah pay fer them pills and stuff. So I went to the pills place and gavem my paper frum the docter tellin me I cud get sum pills. So they sed no. They sed my paper can get changed, and cuz I is pore, I’m gonna messen with the paper so theys gonna ax the docter if I rally gotta have pills cuz they thank I made up the pills paper. Kin you balave that? So they woonent gimme any pills for my bladder. Dang me. An the Oregun Helth Plan also wants to no why tis I want eleven dollar pills. They gotta call the docter and ax why I gotta get antibodies. Why I take antibodies? Cuz, I is pore and I muss be a druggie who makes up the pill paper. Itsa shame fer me cuz the docter was close up wen the pills people callem up.  Them pills people coonent ax the docter if I made up the paper and coonent ax the docter if I is a druggie tryin tah get sum antibodies.  Sheesh.

Physical Therapy

The Elbow, Lying on the Couch: When I was young, I fell and was broken. It was a hard fall. Out of a tree. The ligaments surrounding my cartilage were torn. I hurt for months. I was swollen. I couldn’t breathe properly.

Physical Therapist: How do you feel about that?

Elbow: It hurts, you know? I mean, I still feel the ache of that painful day.

Physical Therapist: What do you think you can do to move past this? What is done is done.

Elbow: I just don’t know. Maybe I’m going to have to work on moving past that time, stretch a little.

Physical Therapist: I can prescribe something if you like.

Elbow: I’d like to try and work through this without medication, but if the pain becomes too intense, I may have to take you up on that offer.

Physical Therapist: I’m always here.

Elbow: I know. These sessions help me to maintain my sanity.

American Idol had some kids talking about the statistics on poverty. The thing is, they’re preaching to the choir. Those of us watching this can’t do anything global about the problem and those who can aren’t going to watch this and do anything about it.

On another note, I’ve decided I’m going to start my own corporation to operate in competition with Monsanto. I’m going to hire a bunch of scientists and get them to patent dogs and cats. Then when people try to breed them, I’m going to sue their asses off. Of course this will be after I’ve harassed them and terrified them, taking photos of them out walking the puppies and cuddling the kittens. How dare these people interfere with my right to own life? I’ll also go after anyone who buys the puppies or kittens unaltered. If they think they are going to let those animals breed without my getting paid for it, they have another thing coming.

I don’t think I know how to be loved, at least in the sense of a significant other relationship kind of love. I have gone through every relationship I’ve had as an adult and concluded that the only man who ever truly loved me was my husband, and it was if that relationship was doomed before it began, at least from the point where we got married. The poor man was completely emasculated by his mother, and the day we moved into his parents’ house was the day we kissed that relationship goodbye, even though it limped on for another four years.

Anyway, I thought about this and I have no idea what it feels like. I only know what not being loved feels like. I know what my partner loving someone else feels like. I know what my partner having no clue about love for anyone feels like. But I can barely remember what it feels like for someone to love me. I wonder if a person reaches a point where she wouldn’t recognize it if it fell in her lap. I am so used to unrequited love. I am so used to beginnings that never go anywhere. I have zero clue how to go beyond that.

How do you learn if you never get the opportunity to try?  How do you keep believing you are lovable if no one ever loves you?  The last time it happened for me was fourteen years ago.  That is such a long time.  Actually sitting here and contemplating this I just can’t believe the length of it.  That is a significant chunk of time.  God, all this advice.  Don’t base your happiness on a man.  Live your own life.  Build yourself.  It’s great to do that, but how do you learn the lessons a deep relationship teaches if you never get into that place where someone else really loves you?

I wonder if most people are truly unloved.  I know there are a lot of people married out there, or in long term relationships.  Does that mean they have been loved or are loved?  How is it they get there?  I’m absolutely, utterly and completely baffled by this.

It is a quarter to midnight.  I started to go to sleep but woke up.  That is the worst time to wake up, when you’re still in the beginning stages of sleep.  I find it nearly impossible to go back to sleep in any reasonable fashion if I’m awakened within the early stages of sleep.  I’m tired, but can’t sleep.  I’m too tired really to read.  There is nothing I want to watch on television.  I hate television really.  Maybe I’ll find some Youtube or something to watch.  This sucks.  I have to get up early too.  Ah well.  I’m used to insomnia, just not at the beginning of the night.  I hope this means when I do finally fall asleep that I won’t wake up at 3, but I wouldn’t bet on it.

Molly

Woke up this morning to my dog Molly having a major seizure.  Her head was all twisted to the left her spine all to the right she could not stand she was shitting and pissing herself and her eyes were pointing in opposite directions.  It was horrible.  I’m kind of weirded out by the fact that last night I was writing about my other dog’s death, something I haven’t written about in months and I woke up to this happening.

I took her to the vet and she was not optimistic.  However since Molly seemed to improve over the course of the visit, we decided to allow her to come home and say bye to everyone.  Through the day, she improved to about 95% normal.  If you didn’t know her, you wouldn’t know she is still off.  She’s got this Picasso look to her eyes.  They’re kind of cattywompus.  I took her back to the vet this afternoon and we have adopted a wait and see attitude.  As long as she seems to be comfortable and her quality of life is decent, she gets to stay with us, but we’re clearly on a track out.  It is most likely Molly has a brain tumor.  I could spend a thousand bucks to try and find out what is wrong, but there is obviously neurologic damage and even knowing wouldn’t improve her long-term prognosis, so I’m just going to let what it is run its course.

I’m too tired to say any more than this.  I sobbed all morning long.  I’m spent.  Grief takes energy and now mine is gone.

Brain Robber

Insomnia is cruel.  Like an invisible burgler it crawls through the window of your brain robbing you of sleep.  The parts for sleep may all be there, but insomnia has stolen them.  You can try the tools, valerian root, guided imagery, good hard exercise during the day, earplugs, white-noise machines, eye covers, making certain not to drink any liquid before 8, but they operate like an average casino against Danny Ocean.  They just don’t work.

I manifest stress as insomnia.  I have for years.  Sometimes it feels as if I have spent as much time staring at the walls and ceiling in the dark as I have during the day.  I have learned to manage stress and all the techniques for its alleviation.  Above all, I have learned not to sweat the small stuff because it’s the small stuff that makes the big stuff even bigger.  Because I have had insomnia off and on for years, I have of course read all about it, in books and on the internet.  I have swapped stories with my other insomniac friends.  I learned there are two primary types of insomnia:  one in which the insomniac cannot fall asleep and the other where the insomniac has little difficulty drifting off, but awakens in the middle of the night and cannot go back to sleep, then finally falls into a deep sleep right before it is time to get up.  This makes getting up and getting moving extremely difficult.  I have the second type.

I recognize different facets of insomnia.  If my brain is running in circles, I hear the same song over and over and over like a broken record, and I know I have to find some way to break the cycle to get back to sleep.  An insomniac friend told me of a technique whereby you roll your eyes back and forth while closed, mimicking REM sleep. This works in some instances, but only for the brain running kind of insomnia.  Other times my brain isn’t running in circles, it is just awake, moving from thought to thought.  In this instance, I try to focus very heavily on where I am:  the pillow, the blankets, being comfortable, being warm.  The only problem with this method is that if I have to go to the bathroom, it becomes immediately obvious.

I normally have a vivid, photographic and strong audial memory, but it disappears when I have not been able to sleep.  I turn into a zombie after a few days of this misery.  Staring into space, missing words, forgetting things.  It’s terrible.  Because I knew this about myself, I knew that if I was able to sleep while taking the bar exam, I would pass.  If I did not sleep, I would not pass.  It was as simple as that.  I had the experience of hundreds of tests prior to go on, as well as horse show competitions.  I knew my performance depended on my ability to sleep.  Because of this, I went to a hypnotist three times before taking the bar exam.  It worked.  I slept.  I passed.

Insomnia has not been nearly as big a problem for me for some time as it used to be.  I think my body just became so used to outside stressors it gave up even bothering to respond to them.  I’m sure my cortisol levels were through the roof.  But at some point, stuff really didn’t bug me anymore.  Some person pulls in front of me in their car.  Ah well, it’s not me, it’s them.  The dog tracked in poop?  Okay, guess I’ll clean that up.  I don’t know.  I suppose it just did not seem worth it to ruin a moment getting all worked up about something meaningless, something that would increase my stress level, and ultimately impede my ability to sleep.  I have even learned to relax about insomnia, and that step alone seems to have been the biggest contributor to ridding myself of it.  I wake up in the middle of the night.  Okay, fine.  Guess I’ll lie here.  I’ll be fine tomorrow.  And so it’s been.

Only now I have insomnia again and it is different.  First of all, I can’t go to sleep.  Falling asleep has never been so consistently difficult for me.  Then once I do fall asleep, it’s fitful.  I awake easily and also awaken at my old insomnia wakening time of 3 or 4 a.m.  And it is like I have multiple facets of insomnia manifesting at the same time.  The brain is running in circles and active.  Plus I have been getting anxious about having insomnia, and I haven’t been anxious about insomnia in years.  Last night for instance, I finally reached that relaxed point between sleep and wakefulness when my brain interceded with the thought, What if I don’t fall asleep? With that, I was instantly awake.  Damn brain.  Shut up already!  What is that?  Why did it do that to me?  And so it went for what felt like hours.  Time always feels longer when you are trying to go to sleep.  I finally did fall asleep, but I woke up several times.  This morning when the alarm went off it was torture to struggle out of bed.

So here I am.  I know what is going on.  I have a pile of bills and I can’t pay them.  I have dozens of outstanding job applications, even for mundane positions, and no one is calling.  My house is for sale and I need for it to sell so I can leave here.  I try not to get too excited about leaving, but it is hard not to want to escape when it feels like nothing works.  It doesn’t matter if the approach is to lay low for a while or go gung ho for a while or somewhere in between, nothing works.  Maybe I have been cursed.  But I don’t go around feeling that way.  I figure life hands you stuff, you deal with it.  It doesn’t help to go all martyr and negative and lament a lousy life.  I can want to leave more than anything and see if it’s better somewhere else, but I’m not going to ruin this moment hating it.  Only it seems my body hasn’t gotten the message.  It’s freaking out on me even as the mind says no.

I asked my counselor about this.  Why is it, I say, that my body is rebelling?  My mind is cool with this.  I’m getting these trials to become a stronger person.  I’m growing. I’m fine.  She says it is an enormous amount of stress not to be able to pay your bills because it goes to fundamental security.  Okay, fine.  I get that.  But if I’m not stressing about it when I’m awake, I don’t need to when I’m asleep either.  What is the point of getting to the point where you don’t sweat the small stuff when you are awake if your body freaks out when you’re supposed to be asleep?  I suppose it is something to do with the stress not necessarily being small stuff, but I just don’t want to sweat that either.  It’s not fun.

So I’ll keep on keeping on.  I’m sure this is a rambling incoherent post because I am kind of like a drugged person, I’m so tired.  I stop periodically and stare at the lamp.  I pause because I’ve forgotten a word.  I actually had to spell check thief.  That’s sad.  For me it’s sad. And then I come to the end and have nothing further to say.

More Confessions of a Fraudulent Cancer Patient

By the time I felt the lump in my breast, sometime in late October or early November 2006, I had experienced six months of my own personal hell. I became the person that my friends used as a yardstick against whom to measure their problems. We would have our conversations, and they would talk about their miserable jobs or problems with their partners. Then they would say, “But at least I’m not you.” Ah yes. Good thing, huh? And this was not about to change any time soon.

I do not know which day exactly I felt the lump in my breast. I was not a vigilant lump checker. Rather, I would periodically think to do a self-exam while in the shower or while dressing. I rarely did as thorough a job as the nurses would during my yearly annual exam. Actually, come to think of it, I never did that thorough a job. I would just remember sometimes to check and that is what I did one morning while getting ready for work. Sometimes I would find a lump and fiddle around with it and it would go away. I would realize it was a gland or a pimple or something else, but not something to worry about. And on that particular morning, I found a lump while I was in the shower. But when I started fiddling around with it, it did not go away. It stayed.

I got out of the shower and got dressed. The lump stayed. I asked my daughter if she could feel it and she could. I was not scared, but started to feel a little concern that perhaps I should have a doctor look at it. I would wait and see if it went away. Over the next few days the lump did not go away. I did not feel alarmed. I did not worry that this was cancer, but I finally decided to have it checked out by a doctor.

I do not have health insurance. I did not want to incur a large medical bill, especially for a lump that was likely nothing. A few years ago, I sprained my ankle and because I did not have insurance, Providence allowed me to fill out a form stating my financial situation and forgave the debt. I remembered this and called them to inquire about proactively getting coverage before seeking care.

The process was not easy. Ironically enough, it is easier to get assistance when you have more money than when you have less. I had been unemployed for nearly a year. I had drained the last of my savings paying an attorney in a court battle with Milla’s father. I had nothing left and Providence wanted to know how I could make it when I had nothing. They wanted to know how it was that I had a couple thousand dollars in the bank. I told them the truth. I had sold some furniture. I had sold Milla’s pony.

How had I gotten to a place of such desperation? I am an attorney. Everyone thinks attorneys are rich. That is so far from true, it’s laughable, especially when you factor in student loan debt. It’s obscene. Most of my friends owe near or over six figures, and I am no exception. When I left law school I worked for a firm, then I started my own practice. The first couple of months were tough, but soon after, the clients who had come in for initial consultations starting coming back to file, and new consultations were steady. I had more flexibility than I had dreamed possible, was earning a good living, and doing fairly well. Then Congress decided to change the bankruptcy laws and life as I knew it developed a deadline. No one knew exactly how things would be different after the laws changed, but we all knew business would experience a dramatic decline. I took as much business as I could in the months leading up to the law change. I took as many clients as I was capable of seeing. I worked seven days a week, often ten and eleven hours a day. Luckily since I was self-employed, I could bring Milla with me to the office. It was brutal, but I knew that the money I was earning would likely be the last I would earn for some time. I even found the time to apply for different jobs, but I got no interviews or opportunities.

Saying my life changed after the law changed would be a huge understatement. Other than child support, I had zero income. I closed my office and moved it home to save on overhead costs. I cut our expenses to the bare minimum. I did everything I could to ensure that every last dollar I had saved would stretch as far as I could stretch it. I was unemployed for nine months before I found a job as an executive assistant at an internet marketing company. Because of my law degree, they offered to pay me more in order to have me draft and review some of their contracts. The company’s books and operations were disorganized. I streamlined everything, reviewed and rewrote all of their contracts, and basically organized myself out of a job. Three months later they laid me off for lack of work.

The rest of the year did not fare much better. My daughter’s father took her and did not send her home. Custodial interference they call it. I call it feeling like my arms had been removed along with the capacity to do anything except lie in bed until three in the morning watching VH-1. It actually worked in my favor that I did not have a job because I would have been useless at it. The court case dragged on for months and cost thousands of dollars.

Through the fall I worked frantically on my house in an attempt to get it ready to sell as my savings drained away. By the time I found the lump, I was planning to put it on the market because I would only be able to pay the mortgage through the end of the year. So I set out to beg Providence to allow me a visit at reduced or no cost. I went ahead and made the appointment, figuring it was best to find out regardless whether I ended up with a huge bill.

As I waited in the examination room after the nurse had left me to change into a paper gown, I felt again to see whether the lump was there. I remembered all the times before I had felt lumps only to have them disappear within days. It was still there and I was still not worried. The nurse came in and asked me why I was there. I described the lump. I described finding it. She asked me to lie back on the bed with my right arm above my head and proceeded to examine my right breast. As she made the examination she described what she was doing. The room was passionless and clinical. November sun streamed in, enhancing the cold, blue florescent light. It was chilly and I wanted my turtleneck back.

She began to examine my left breast, moving in large circles from far outside what I considered breast tissue, working her way in. She explained that this was necessary because breast tissue is present in the areas surrounding the breast and that lumps could form there. As she moved closer to the lump, I wondered whether she would find it too. I still thought it was nothing. She moved her fingers back and forth and back and forth across the spot. “Is this it?” she asked me. I told her that it was. She asked me if it hurt. I told her it had not initially, but my prodding the spot for days had left it feeling bruised. She completed her examination and had me sit up.

“It is likely nothing,” she informed me, “But I want to get a mammogram and ultrasound to be completely sure.” I asked her then if she knew whether I had been approved for Providence assistance because I did not have insurance. She didn’t know. As she entered my information into the computer and waited for a printout, she said she thought there were places I could get a mammogram for reduced cost. She wrote some names and numbers on a piece of paper and handed me the printout ordering the tests.

Later that day I called all of the numbers she had given me. I left messages at a few of the places and waited. The ones I spoke to had no help for someone under forty. This was the story everywhere I called. Do you know how difficult it is to get someone to talk to you about getting financial assistance for a mammogram when you are under forty? In spite of having a lump and a doctor who wanted to see it, no one wanted to talk to me because I wasn’t yet old enough. It was crazy. I complained to my friends about the mammogram thing. With all the lip service paid to “finding a cure” why the hell can’t we find out if someone under forty has breast cancer in the first place? No one had an answer for me.

A few days later, the nurse practitioner called me to ask if I had scheduled a mammogram. I had to admit that I hadn’t. When she wanted to know why, I explained about not having insurance and that Providence was stalling on my application for assistance because I had too little income. I told her that all the providers I had called about free mammograms would only give me one if I was over forty.

She asked if I had called the Breast and Cervical Cancer Program. The what? No. I did not have that number and had not called. She gave me the number and the name of a specific person. She told me to call her and she was sure my age would not be an issue. I called and left a message and a short time later a kind woman called me back. She asked me some questions about my income and said it appeared I qualified for the program. She told me to fax over the order for a mammogram and ultrasound, and assuming all was in order, I could schedule a mammogram.

The National Breast and Cervical Cancer Early Detection Program (NBCCEDP) is run by the Centers for Disease Control. It provides access to breast and cervical cancer screening services and diagnostic testing when the tests are positive for women who are not insured or cannot afford care. According to the CDC’s website, Congress passed the Breast and Cervical Cancer Mortality Act of 1990. This statute directs the CDC to offer these screening services, presumably to do just as its title suggests, prevent deaths from breast and cervical cancer. What a great idea–preventative care. Imagine that! Whether or not the program prevented my death can’t be said for certain because who knows what would have happened had I never gotten screened, but I am alive today and my cancer is “cured,” so it accomplished that much. At the very least my detection ended up being so early I was spared chemotherapy and more drastic surgery.

After gaining approval for services, I scheduled my mammogram and ultrasound. The medical center scheduled them for the same day, the ultrasound to follow the mammogram. They told me not to wear deodorant or perfume because it could mess up the mammogram. The mammography center was in the hospital in my town. The entrance was designed like so many hospitals today: photos of all the busy and important people on the board of directors, photos of past busy and important people, muted, earthy-colored carpets, printed statements letting us patients know just how much the hospital cares about us. I headed past some low-slung chairs and asked the woman at the information desk where to go. I had to fill out some paperwork in the mammography area, as well as give them the paperwork the nurse practitioner had given me ordering the tests be done. A short time later, the technician called my name.

I wondered then, as I did many time later, why is it that the medical professions require nurses, techs, and other medical helper-people to wear smocks that look like they were designed for six year olds? Are they keeping them ever prepared on the off chance a child might walk in and find comfort in the infantile patterns and colors? This theory doesn’t make much sense when the person wearing such a garment works in a place like the mammography center where the likelihood of a child patient is slim to none. Perhaps they want to subtly remind the adult patients that we are being cared for and should not only feel safe, but accept our care like good children. I don’t know. It baffles me.

In spite of the fact that her garment was more suited for a jaunt on a kindergarten playground, the technician who assisted me that day was wonderful. In fact, every mammogram technician I had throughout my entire cancer experience was wonderful. I don’t know if it’s that those kind of people are drawn to that kind of a job, or if they just love what they do, but as a group, every one of them who helped me was just so cool. They were professional and did their jobs, but all of them just seemed to enjoy having me as a patient and doing what they did.

Getting a mammogram is not an enjoyable experience. Yes, there are lots of worse things. I admit it. And complaining about mammograms seems rather silly considering how helpful they are. But seriously, why can’t they design a machine that is shaped in such a way that accommodates the rest of the body?

First they hold your breast and pull it out from your chest as far as possible, laying it on a plastic tray. At this point, you’re thinking things aren’t so bad. Then the tech steps on a little lever and that plastic tray rises up under your breast in a manner that leaves you thinking maybe they are trying to slowly tear it from your body. This requires a slightly balletic toe dance as a method of self-preservation. The tech then pushes another lever and another plastic tray lowers down and squashes your breast as flat as it will go as she asks how you’re holding up. Fine. Yes, fine. As long as I don’t tip over backwards, I may avoid an unplanned masectomy. She then decides that your arms and shoulders are in the way. Relax your shoulders. What, they aren’t relaxed? They feel relaxed to me. But apparently not because she presses them down hard with her palms.

At this point I was on my toes to keep my breast from feeling like it was being ripped off from the top, shoving my shoulders down, and feeling very nearly like I might tip over backwards. This led me to grasp wildly for a bar along the back of the machine. Oops, no! Can’t do that. Then what are the bars there for? To taunt me? Ack! I was allowed to hold the bar with one arm. That was a bit of a comfort anyway, until it became apparent that my head was in the way. Lean your head back. Lift your chin. Oh my god, I’m going to fall over backwards, I just know it, and rip off my tit in the process! I felt like someone who had fallen of the top of a very tall building and was holding on with one pinky. It was kind of funny when the tech went over to a computer screen to take the picture and told me not to breathe. Breathe? I hadn’t breathed since the top plastic flattened my breast into a neat pancake for fear of its being torn off! After repeating the process with the breast from a side angle, she left to speak to the radiologist. I sat there, topless, reading a book.

A short time later she came back and said they needed some more films, up higher, in my arm pit. We did the whole thing over again, only the squishing process was more difficult because there just isn’t much flesh there for the machine to grab. She would struggle to position me so she could film as far into my armpit as possible, go take the photo, shake her head, and begin again. Over and over she tried in vain to see whatever it was she was looking for in that armpit region. Several times she left to consult with the radiologist.

This wasn’t where the lump was at. This was something different. What were they looking for? Each time she left I would stare entranced at the moon shaded breast on the computer monitor. It really was lovely and looked exactly like a little lunar surface traced with spidery trenches and occasional clouds. Mammogrammed breasts are beautiful.

Finally, after an extended absence with the radiologist the technician returned and announced that they wanted to film another place, towards the center of my chest, in the top quadrant of my left breast towards the center. If the armpit was a struggle, getting breast tissue from my flat chicken chest was even worse. There just wasn’t anything there for the machine to grab ahold of. However, she must have managed because it only took a couple of tries before she and the radiologist were satisfied.

Time for the ultrasound. I redressed and followed the technician through the perfectly manicured halls to the room where I would undergo an ultrasound. Unlike the mammography center, this room was much more clinical. Where the mammography center was a cozy, welcoming place where everyone could sing Kumbaya together, the ultrasound room was like a large hospital room. The floors were the same industrial tile that had lined my elementary school, speckled grey things with the occasional navy blue tossed in for fun.

I was introduced to the ultrasound technician who requested I go into the attached bathroom and change into a gown, front open. Okay, I know I’m digressing yet again, but I have to wonder sometimes what makes them decide whether your gown opens to the back or to the front. There were times, like this one, where the opening to the front made sense. We’re aiming for the breast. It’s in front. Open to the front. No brainer. But other times I would be told to leave the gown open to the back, like later, during radiation. In either case, the gowns were so big I had to wrap the strings around my neck twice or hold the whole thing shut so I wouldn’t flash the planet.

I went back into the main room. A bed sat in the middle of the floor, the television monitor on which the ultrasound image would appear beside it. Another television was mounted on the wall over to the left, presumably so the person lying on the table could see the images available to the technician. I waited for a few moments and the ultrasound technician returned. She was a plain woman wearing the usual babyish outfit. She told me to lie down on the table with my arm above my head. As she instructed me how to lie on the table and moved the ultrasound wand in cold rotations over my breast, I attempted to make small talk with her. I asked her questions about her job, about the machine, about what she was looking at on the screen. After a few moments she told me the ultrasound machine was quite sensitive and that it did not work properly if I spoke. Basically, she was telling me to shut up. I lay there quietly for the next forty-five minutes while she took photographs of my breast.

Weeks later when I had another ultrasound, the technician chatted amiably during the entire procedure. I asked him whether the machine was so sensitive it would not work if I were speaking. He laughed and asked me what made me think I couldn’t talk. That first ultrasound technician was the crankiest person I encountered during my entire cancer experience, and really, she wasn’t that bad. She just didn’t want to talk to me. Throughout the entire process, all the nurses, all the staff, all the doctors were as kind and professional as they could possibly be. All of my doctors seemed to respect my education and explained things to me in great scientific detail, usually in response to my fairly detailed questions. None of them treated me paternalistically. None of them were ever rude or unkind. I have never in my life had an experience where every single person along the way was as pleasant as the medical staffs I encountered during my breast cancer diagnosis and treatment. They were truly astounding.

A couple of days after these procedures, the nurse from Providence called to inform me that I needed to schedule an appointment with a surgeon because the films showed something questionable. She said the lump I found appeared harmless, but there were other questionable things on the film that would need to be biopsied. She told me to call the Breast and Cervical Cancer lady and let her know. Then she provided me with the names of a couple of surgeons. I thanked her and hung up.

Thus began my journey into cancer. For some reason, from that point on, I knew it was cancer, yet I was never afraid. I told my counselor more than once that I knew I had it before I actually got the results. I marveled that I could remain so calm. I analyzed my feelings constantly. Was there some hidden emotion of which I was not aware? Was I stuffing how I felt? No. I was simply not afraid. It was weird. It is now a year since I began radiation and I have not once had any kind of meltdown or delayed emotional reaction. The doctors explained everything, sometimes such textbook detail my eyes glazed over. I read books and information on the internet. I had nothing to fear.

It was during the radiation process that I began feeling like a fraud. I conceived the idea to write an article about my experience to show women that cancer could be less than they fear.  I spoke to so many who had were terrified when they were diagnosed, terrified through the process, then wondered later what they had been so afraid of. I have heard many more stories of women who did not go get checked because they were afraid they would have the disease, and because of the wait it was more progressed into a place that justified these fears. I began to believe that if I could show that cancer could be my experience rather than bloating, oozing, pain, and fear, maybe more people would get checked sooner and avoid the later stage diagnoses. So here I am, doing this, telling my story.

My radiation oncologist told me that every cancer for which there is a screening process, if detected early, the cancer is curable. He agreed that cases like mine should become the faces of cancer, not the scary death-filled stories. Too many people don’t get checked because they don’t want what they fear and unwittingly create a self-fulfilling prophecy. I am here to tell you, go anyway. Get checked. Make those mammogram and prostate appointments. Wear your sunscreen and check funny looking moles. If you have something and it is caught early, your experience could be less traumatic than the flu.

I have made a few posts about my breast cancer experience.  If you are interested in reading them, just check my categories section or do a search.

Needle Biopsy: Another Way to Say Punch in the Chest

I lucked out with cancer.  I really did.  First of all, I was not a rabid lump checker.  I remembered to do it every few months, usually in the shower.  I did not schedule a monthly visit with myself in between periods lying in my bed as is recommended.  I would be showering or getting dressed and remember to check.  It didn’t matter what time of the month it was.  I had been told that some times of the month are lumpier than others.  So when I felt the lump, I thought it was one of those hormonal lumps, the kind that go away.  This one didn’t, so I had it mammogrammed.  It turned out to be nothing, but the mammogram found cancer.  Very early, very curable cancer.

After my initial biopsy and once the diagnosis had been made, my surgeon re-evaluated the ultrasound results and felt further examination of the original lump was warranted, the lump that led me to a mammogram in the first place.  She called and explained that she just wanted to ensure the lump was nothing. She thought perhaps it was something benign, but thought it better to be safe than sorry. She said that in 99 percent of cases, the lumps were a kind of harmless benign tumor. Normally they do not even biopsy these types of tumors. However, considering I already had a known cancer, my risk was higher, so she wanted to be 100 percent certain.

She gave me the name of a radiologist and told me to schedule a needle biopsy. She wanted it done quickly, before my surgery at the end of the week. We were under the gun because we wanted to get my lumpectomy out of the way before Christmas. Otherwise I would likely have to wait until after the first of the year.   I called the new doctor’s office and scheduled the biopsy for later that afternoon. I was not nervous. I have never been afraid of needles.

The office was in a strip mall. I have to say, it was the strangest doctor’s office I have ever visited. It looked like part of the strip mall, like it should be a store or something. But I went in and it was just a doctor’s office, albeit with really high ceilings.  I remember the day was cool and bright. The sun was shining and even though I was wearing winter clothes, the day felt fresh because of the bright sun. I had the feeling again, walking into that office, that I did not feel like a cancer patient.  I think at that point I still thought somewhere down the line I would turn into more of a cancer patient. I would have these moments where I would stop and think to myself, “Hey, I’m still me. I’m just me with cancer.” It was so surreal. I thought I should feel different or look different or something, but certainly not my normal regular self. Even going into the doctor’s office, it just did not feel like I belonged there.

I sat in the waiting room. My name was called a short time later. The fellow who took me back was an ultrasound technician. He led me to the examination area and showed me a dressing room. He handed me a gown and explained that he would search first for the questionable lump. Then the doctor would come in and perform the procedure.

As with most of the doctor’s offices I encountered, the room was freezing. Why is it that public buildings have to have the air conditioning turned up so high? It’s worse in summer. It’s like because it’s hot outside, the inside has to be colder. Or maybe it is because in summer we’re wearing less clothes. I don’t know. All I know is that in most doctor’s offices, I freeze, and this one was no exception.

I lay on the table in the darkened room, my arms above my head, my chest exposed. The technician covered my breast with warm KY goo and began to rub the wand all over, looking for the lumps.  He asked me questions. He showed me the screen. He told me what he was looking for. He talked about the weather.

I thought this was weird. When I went in for the initial ultrasound back before I was diagnosed, the technician then had told me I could not talk. But this tech was downright chatty, and he seemed to want to include me in the conversation.

I finally asked him, “Are we allowed to talk?” He looked at me strangely, laughed, and said, “Sure. Why not?”  I realized then that my previous technician was probably really just wanted me to shut up. Oh well.

After the technician found what he was looking for, he marked my boob with a Sharpie pen, turned on the light, and left to go get the doctor. I lay there, freezing, ruminating on lying there and freezing. Going to doctors for tests entails a lot of waiting around. Waiting in the waiting room. Waiting in the examination room. Waiting after changing clothes. Waiting with my breast on a mammogram machine. Waiting with slimy goo rapidly turning cold all over my chest.

The doctor came in and introduced himself. A shorter, slight man, he was friendly and talkative, and clearly able to do his job. He looked things over with the technician and the two discussed what they were seeing and where they were planning to biopsy, but he did not forget I was in the room with him, periodically explaining what the two of them were doing.

He finally put down the wand and briefly explained what my surgeon had already told me. She was concerned about the lumps seen on the original ultrasound and wanted a biopsy. They were going to insert a needle into the lumps and extract some of the tissue to analyze and determine whether the cells were cancerous.

To call the needle on the needle biopsy tool a needle is like calling a stalk of corn grass. The thing was huge! After the fact, I would tell people I had a straw biopsy.  The doctor told me he would insert the “needle” into my breast. He would then push a button and I would hear a series of pops, and feel pounding. Because the procedure was somewhat invasive, I would be getting a shot to numb the area. Afterwards, he said I would probably feel like I had been punched.

They were not kidding. I felt worse after the needle biopsy than I felt after any procedure during the entire process.  Nothing, neither surgery, the MRI, the CAT scan, or radiation left me hurting as much as that damn needle biopsy.  How weird is that?

Luckily the biopsy confirmed what my surgeon thought in the first place.  The lumps were benign.  My surgeon ended up removing them when she went in and got the cancer because it was easy for her to do so, but thank goodness, they were nothing.

So Unbelievable

 

My daughter likes box elder bugs. They are these harmless beetle things that only live for about a week. They have red stripes on their back and they fly, their wings little red capes whirring behind them in flight, kind of like little insectian super heroes.  They enjoy warmth, so they hang out in windows and places with heat. They do not bite. They do not sting. The do not emit smelly odors. They do not eat houseplants. They do not do anything whatsoever that harms humans or their dwellings. The biggest complaint about box elder bugs is that they like to come in the house where it is warm, and who can blame them? box-elder.jpg

I did a google search on box elder bugs for my daughter. She loves the things. They are fairly prolific around here in the fall and spring while it’s still warm but not terribly hot. She fills her pockets with them. I told her I was writing about her and box elder bugs and she said, “Oh, I haven’t played with them in a while, cute little things.” That should give you some idea of Milla’s persuasion towards box elder bugs.

Imagine my surprise then to learn that most sites about box elder bugs deal with how to kill them. They are called pests for wanting to come inside. One site listed some nasty poisons a person can use for box elder elimination, including bifenthrin (possible human carcinogen), cyfluthrin (moderate acute toxicity and suspected endocrine disruptor), deltamethrin (a neurotoxin that attacks the nervous system), lambda cyhalothrin (moderate acute toxicity and suspected endocrine disruptor), permethrin (highly toxic to fish and cats), and tralomethrin (effects include headache, dizziness, nausea, vomiting, diarrhea, excessive salivation, fatigue, and in severe cases, seizures may develop).  All of these insecticides are toxic poisons and can harm humans, sometimes even in smaller quantities. Many of them are quite harmful to the animals we share our lives with, as well as those we would rather avoid. What I find so unbelievable is that people would bring toxic chemicals into their homes, spray them, spread them, breathe them, rather than share their space with a harmless insect that does nothing except try to get warm and dies in under a week anyway.  Where is the sense in that?

When I was in law school, Milla’s father and I were still together. We wanted to buy our own house.  We took the advice of a well-meaning, but misguided friend who assisted us in making this purchase. She owned a wealthy home-building company whose clients consisted mainly of older, usually conservative people with lots of money. We did not take our lifestyle into account whatsoever when we took her advice to build our own house as far as possible from the center of town in a suburb.

What a mistake.  We ended up in this country suburb.  As is often the case in these developments, it was named for what it had been:  Big Meadow. The meadow was gone and in its place were stepford houses in limited shapes and sizes, with perfectly manicured lawns and neutral paint, as required by the unrelenting neighborhood regulations. We did not last long there. I quickly realized I was not suited for this. I needed a house to fix up, and since ours was brand new, there wasn’t a lot to do to it. I needed plants to love. We gave the house our love, built a fence and a dog run, but we simply did not fit in. The neighbors brought us proselytizing literature on a weekly basis.  Every visit to the store provided an invitation to our auto windshield to attend a local church play. We were one of only a handful of families who recycled.  Basically, we were major sore thumbs.

Our immediate next door neighbors were especially different from us. The main thing about them that I remember is that on periodic afternoons the woman of the house had her teenage sons out in the yard and driveway with square-nosed shovels to search for garter snakes to kill. She did not want them anywhere near her home. Since her house backed up to the edge of what had been the big meadow the neighborhood obliterated, garter snakes were frequently in evidence. After her sons killed a sufficient number of garter snakes, she would spread poison all over her yard to kill insects. She would kill the harmless garter snakes that would have eaten the insects and chose instead to cover her yard in toxic chemicals.  Insane.

I am constantly amazed at the irrationality of human beings. I am certain that irrational behaviors are likely part of my makeup simply because I am human. I would like to think though, that most of my ridiculousness isn’t destroying the planet.  I hope not. I can hear it now how someone just doesn’t like the legs on bugs. Spiders give them the creeps. They don’t like the “idea” of something coming into their bed. So they’ll spread toxic chemicals all over their house and lawn to rid themselves of “pests.” At least the chemicals aren’t creepy and crawly.

I find it ironic that acts of compassion and kindness are considered humane, as if placing the name of homo sapiens on such behavior distinguishes us from other creatures on earth. Yet the only thing that really distinguishes humanity is our ability to systematically annihillate ourselves and our planet because of silly things like insect legs or the possibility that another creature might come into our beds. I just don’t get it. Perhaps a better definition for humane would be anything except compassion and kindness since our race seems hell bent on destroying this place we call home. At least we can say that while we were on our way out we didn’t have to share our lives with the box elder bugs.

The Corporate Addiction Palace Has My Number

Yep.  It’s on speed dial.  LARA!  It calls. Come on down here for a bit.  You know you want to.  Stop writing and web surfing and come on down.  We’ve got a yummy chai tea waiting right here for you.  Oh, it’s not that expensive and you know you want it.  Imagine that warm feeling running through your veins.  Imagine the clarity in your head once the drug bathes those neurons.  Imagine all the fantastic things you’ll want to do and accomplish under the influence of the drug.  Mmmm, now isn’t that nice?  Don’t you want it?  You know you do.

I can’t do big caffeine.  A diet coke sends me into shivers for hours, I’m that much of a caffeine lightweight.  But my brain has most certainly made full use of the small amount I imbibe on a daily basis, spreading it around to all parts.  It might be thin, but it covers.

Okay, non-sequitur here, but human bodies have some aspects to them that are just so yucky.  I know it’s a marvel of engineering design and all that, but some things like mucous…yuck.  And farts.  What is that, Mother Nature’s sense of humor?  Something sent to remind us we aren’t busy and important?  And other things I won’t mention.  Gag.  I just had to point this out.  Yech.

One other pointless rant.  Windows.  You click on something and nothing happens and it gives you a nice message that says, Such and Such is Not Responding.  No fucking kidding?  I couldn’t fucking tell when I clicked on it 800 times and nothing happened.  The stupid message makes me want to throw the computer more than the fact the damn program froze.  Piece of crap.  Some Microsoft techie created that message just because s/he knew it would put people into fits.  They’re having fun at our expense.  I know it.

A Million Little Thoughts

I was thinking about the book A Million Little Pieces by James Frey.  I found the book to be an entertaining read. James got into a lot of trouble for embellishing some of the book and not admitting it up front. I wonder what he was afraid of that he didn’t just put in some disclaimer saying as much when he wrote it.  I doubt anyone would have cared. Unfortunately, the fallout was huge, and he’s still brought up as some sort of failure of a journalistic standard or whatever.  It all was way too overboard though. I mean seriously people.  Get a grip.  What I find ironic is that people managed to get so up in arms about it considering he called himself a liar several times in the book, and also he seemed the sort who liked to make a story big.  And the stuff he embellished was the stuff that made the story big.  Plus if he manages to offer some other solution to addicts besides various anonymous, then more power to him.  And he was honest about calling himself an addict and a criminal, which he was, at least the addict part.

I don’t know that I like the word criminal.  Yeah, someone did a crime and maybe at that point they were a criminal, but if they repent does that make them a criminal forever? Kind of like an adulterer or murderer.  But if we’re going to label someone something like that forever, then if they had been honest and hardworking then committed a crime then were honest and hardworking again, aren’t they still honest and hardworking?  And are all crimes necessarily dishonest?  I have known more than one person who had an affair while married or in another sort of long term relationship who did not repeat their behavior in other relationships.  Does that still make them an adulterer?  I guess you couldn’t get over murderer though. Once a murderer, always one I suppose.  Funny how we choose certain labels that can be added or subtracted depending on the circumstances, but the bad ones certainly seem to stick around longer.  Okay.  I can’t say anything anymore.  It all becomes some damn theoretical debate in my head, all this trying to get at the truth of something that may just be limited by language

As I may have mentioned before, my brother is staying with me at the moment.  I have been paying close attention to him, and I have noticed one consistent aspect to his behavior, and that is his absolute inability to delay gratification.  I know studies show that inability to delay gratification in early life can be a predictor for addictive behavior later in life.  And Derek just can’t.  It’s nuts.  He wants something, he wants it now, and he is basically obsessed about it until he gets it.  On occasion I have been able to explain him out of his desire for the thing, but often it will come up again several times with me reminding him again of the reason out of the desire until it finally sinks in or another thing rises to take its place.  For instance, I am minimally employed at the moment, so money is tight.  This means I do my best to keep from squandering it on things I don’t need.  Derek, however, has no job at the moment and has about $700 left.  He wanted a new external dvd drive, so he ordered it.  I asked him why and he said he wanted it.  I told him he might need the money for food or something later, and he just kind of shrugged.  I think on some level he must recognize his inability to keep from spending money if he has it because he gave me $500 to hold onto for him.  It also serves as a kind of monetary deposit should he fail to get another job and pay me for the space he sleeps in my basement.

I wonder if this inability to delay gratification is the key behavioral component that makes an addict an addict.  I’m sure all humans at some point or another have moments of unwillingness to wait for something.  I know I have paced and waited and stared at the phone hoping that new guy will call, biting my thumbnail to the quick, jumping like a startled rabbit when it finally does.  Or not even waiting, but picking up and calling him, then kicking myself in the ass afterwards wondering why didn’t I wait, damn it!  And credit cards are evidence alone that many, many people want stuff before they can afford it.  But I wonder if addicts choose to act more often than not.  A food addict wants food and eats.  A sex addict wants sex and goes to find it, regardless of the consequences.  An alcoholic wants alcohol and drinks, again regardless of the consequences.  Curious.  There is probably a body of theory and study out there in addiction medicine all about this, I’m just not in the know about such things.

Well, I can no longer delay my desire to eat.  I’m hungry.  So I’m going to go and make food.  The desire to write has been overridden by my body’s need for something in its empty stomach.

My Poor Ass

One of the best reasons in the world not to stop exercising once you have started is that you will have to start again.  It’s hell on the body and seems to get worse as one gets older.  I have always been active, had to be for sanity’s sake.  I just have one of those high functioning, high energy metabolisms and brains that suffer from lethargy.  Luckily, growing up, I had no derth of exercising options.  My parents’ driveway is literally a mile long and I had to walk it to the school bus stop rain or shine, sleet or snow.  My sister and I were like the post office: through rain or sleet or dark of morning (not night, we weren’t vampires) we always had to deliver.  We walked or ran that driveway twice a day every day the entire time we went to school.  Nearly daily we would beg our sweet bus driver Annie to drive us up our driveway.  Her answer was always no.  One year for Christmas she gave me a chocolate N and Melanie a chocolate O.  At least her answer was consistent.  One time a bird pooped in my sister’s hair on the way down.  She was pissed off.  I laughed.  For some reason, we weren’t always cordial during those years. Gee, I wonder why… ?  I used to run the driveway on the way home.  It was mostly uphill and I liked getting home quickly.  I got to where I could run up in under five minutes.  Maybe that’s why I was so good in the 1500 m in high school track.

Our parents NEVER let us stay home from school.  I mean never.  I had chicken pox in 8th grade.  My parents sent me off to school even though I felt like shit and was itching like crazy and the school sent me home.  I dislocated my shoulder after having a horse land on me when it crashed through a fence rather than jumping over it.  Again, I went to school the next day even though I was in my own personal hell.

Needless to say, I got lots of exercise without even trying.  Plus I rode horses and ran on track and was even on the dance team a couple of years (that was a hysterical laugh, I can assure you).  Then when I moved away I kept riding and took up running and basically kept moving for the next decade, again, without really trying.  In college I started swimming.  My lifestyle kept me on the go.

Then I got pregnant and felt like a lumbering beast.  It hurt to move after a few months.  Walking was torture.  Everything I read said that if you’re fit going into pregnancy then pregnancy would be a breeze.  I was fit going into pregnancy and if that was a breeze, being unfit while pregnant must be sadistic torture.  My hips hurt.  My back hurt.  And I was as big as a house.  I’d always been stick skinny and suddenly I couldn’t fit into bathroom stalls.  After pregnancy I had to work a bit to get into shape.  It wasn’t as fun.  But I had the baby and bought a jogger stroller and got back into the swing of things.  I started riding again when she was 5 months old and that made all the difference in the world.  You know, all those people who use thigh masters and butt exercisers should just start riding sport horses.  It’s athletic as hell and gives you great abs, tight thighs, and a butt without much effort.  I’m not talking fat western saddles waddling into the mountains riding, I mean sport horses, jumping big fences and dressage on the flat.  It’s good for the body, I can assure you.  I started using a gym at one point to get strength training because I had always done aerobic exercise.  On all the equipment, I was pretty pathetic, using one or two of the little weight bricks.  But on the inner thigh weight lift, I could lift the entire stack!  Those inner thighs become little killers when you ride sport horses a lot.

Anyway, as is often the case, I digress.  In March 2005, I was jogging and sprained the shit out of my right ankle.  Seriously reamed the damn thing.  This killed my running career for the time being.  I was able to continue riding, but I wanted more.  So I took up biking.  I have kept it up.  I love it.  I put a rack on the back and drug Milla around with me until she learned to ride her own bike.  There’s nothing like climbing hills on a bike with a 30 pound lump on the back of your bike for getting strong, I can assure you.

But for some reason this fall, I just kind of stopped exercising as much.  Last year I had the excuse of stress and cancer and all that shit.  I had to sell my horse a year ago to pay the mortgage so I wasn’t riding.  But in the spring after radiation and everything, I started back easy and it wasn’t too terrible, but it wasn’t much fun either.  And I didn’t exercise as much last summer as I had always before.  It probably had something to do with our miserable ass weather.  It rained most of August.  What the hell is that?  We got sun for June and July and that was it.  We got screwed.  It started raining in August and has basically not given us much of a breather since.  During September I ran, doing interval training where you run like hell for a quarter mile or so then slow down then run like hell again.  But once it really started raining again, that was that.

So what brought on this little soliloquy?  Today I went riding again and it KICKED MY ASS.  I’m tired as hell and although I don’t feel those muscles yet, I can tell from the weakness in my hips, back, and abs that I’m going to be so sorry tomorrow and the next day.  Lucky me.   And a few weeks ago I went cross country skiing.  Again, kicked my ass.  And last summer, when I actually had been doing some bike riding, I rode in the Providence Bridge Pedal.  I did the middle distance.  I think it was 12 or 14 miles.   Not much compared to what I have done almost daily in the past.  Kicked my ass.  All these times, the ass kickings have manifested as my being tired as hell afterwards and sometimes lasting a few days.  It’s like my stamina is cracking or something.  I wonder if it has to do with the stress of last year, which was enormous, of if I’m just getting old.  Maybe it’s both.  I don’t know.  What I do know is that tomorrow my ass is going to seriously hurt and I am just not looking forward to that.

Pointless Rambling

After all of my ranting on racism in the last few days, I feel drained of words.  I have a fabulous idea for (another) book though. I seem to have more books in my head than I have time to put them on the page.

I slept without drugs last night.  I think I should get a One Day Pin for this.  I’m quite proud of myself.  I haven’t slept without drugs in weeks now.  Heavy drugs too, like codeine and dextromethorphan.  God, I love that word….dextromethorphan.  But even though I love saying it, I need to stop taking it.  It can be habit forming, and I don’t want to form that habit.  I can see, though, why one might want to form that habit if their cough lasts for two months.  It gets so old.

One thing I will not miss about this job (among dozens) is the constant paging over the intercom system.  Oregon PC on zero five!  Oregon PC on zero zero!  Eric please call Nicole at ten!  Scott please kill Monica on eleven!  (Oops, I don’t think they say that!)  You’re sitting at your desk, trying to attempt some work (or typing on your blog) and the pager squawks some summons.  Gads.

Oh my God.  My dog is sitting on my lap and he just farted.  That is so gross.  Piper!  Seriously.  You couldn’t wait to do that?

Bacterial Update

I went to the doctor today to investigate whether I have been invaded by viruses or bacterias.  As I suspected, I have been invaded by viruses.  Fortunately the doctor gave me lots of wonderful drugs to combat the symptoms brought on by these nasty little bits of protein.  I am normally the anti-drug.  I’m like a commercial or something:  Keep those drugs away from me!  Advil?  No.  Aspirin?  No.  Tylenol?  Definitely not.  But my brain and body have reached a place where the desire to sleep and feel no pain outweighs my desire to remain free of chemical toxins.  So it is with anticipatory pleasure that these drugs will become part of my physical makeup tonight prior to laying my head upon my pillow.

Actually, some drugs already have.  I discovered in my medicine cabinet some acetominophin-codeine I had been prescribed at some point in the past and which I did not take because I avoid narcotics of any sort.  You know, codeine resembles morphine in its makeup because it is an opiade.  It is a weak opiade, but when one is as much a lightweight as I am, it does not take much to put me on my ass.  Alas, I digress.

So last night I took this acetominophin-codeine, as well as a hefty dose of Robitussin DM.  This choice blend put me into a pleasant drug-induced stupor and succeeded in effectively blocking a significant portion of the suffering I was experiencing in my ribs.  Of course, when it wore off at 3:30 a.m. I woke to a pain the likes of which I have never experienced, including the compound fracture in my left arm at age nine, the severe ankle sprain nearly three years ago, or natural childbirth.  But for five hours, I was blissfully unaware of anything.  When I awoke to such severe pain, I simply popped a couple more acetominophin-codeine killers and some more Robitussin DM and was back in la la land within a half an hour.

Will Smith has this new movie out where he is the last guy on earth because some virus killed off everyone else or turned them into a zombie or something.  I have not seen it yet.  However, having experienced this viral infection of my own, it is not beyond the capacity of my imagination to see a virus of this magnitude taking over our little planet and rendering us all helpless or dead.  If everyone were in the state I am in right now, we wouldn’t need to be dead because we would all be useless.  THANK you narcotics for helping me through this.  THANK you cough suppresant for making it all more bearable.  Seriously.

I am glad I’m not bacterial.  I could have kissed my acquaintance who was abducted by aliens and they would have had nothing further to examine on him because there would have been no bacterias.  But being viral is not much better.  And perhaps it is worse.  Bacterias can be wiped out with antibiotics (although that may be going by the wayside with super-bacteria).  Viruses can’t be wiped out by anything except my immune system.  In either case, whether I’m bacterial or viral, I hope to be free of any of the little critters that cause pain and suffering sometime in the very near future.  Perhaps with the aid of the super drugs my physician has supplied I will be able to sleep well enough to allow my immune system to kick a little ass.

First Do No Harm

So my mom is a member of Kaiser.   American Cancer Society guidelines recommend a mammogram and an MRI for women whose mothers, sisters, or daughters have had breast cancer.  I had breast cancer.  Her sister had breast cancer.  Her mother had breast cancer.  Yet her docter at Kaiser told her an MRI was not warranted.  On what planet does this doctor live?  Where is his brain?  Who does he work for?  Duh.  Kaiser.  He wants to keep from costing Kaiser money.  Who gives a shit if my mom gets cancer and DIES.  That’s cheaper for them than paying for a fucking MRI.  Damn insurance companies.

Well, too bad for them that Mom’s daughter called up and figured out how to go around Mr. Hippocratic Oath (not!).  We’re going to appeal AND get a second opinion.  So there. Dumbass.  Would have cost less just to get her the MRI.

“First do no harm.”  Yeah, unless it costs some fucking insurance company money.  Do no harm to insurance companies.  We’ll change the oath to “Thou shalt protect thy insurance company’s ass at all costs, even if a human being dies.”

Evil Guerrilla Virus

These can be addicting.  I sit here and have these random thoughts and want to write them here instead of my journal.  I carry around this notebook to write my strange random thoughts and to draw pictures.  Sometimes I’ll have a dream and write it in there thinking it’s profound and I should make a movie out of it.  Then I’ll go back and read the dream later and realize it WAS profound…profoundly dumb. Now I’m experimenting with background color.  Yes.  My time is well spent.  Well spent indeed.  (:I had a cold in early November.  A nasty wicked cold that kicked my ass and left me in bed for days.  It lasted about 3 1/2 weeks.  It started with a wretched, mind-blowing headache that just hurt no matter how much caffeine or ibuprofen I poured on it.  Then there were two days of sore throat that hurt so badly I could not speak and swallowing was pure hell and torture.  After that cleared, I suddenly had snot gushing from every available orifice in my head.  That started to clear and I began to feel the rumblings low in my lungs of a cough that rattled every joint in my body.  I attempted to stave off the cough, but to no avail.  I would lie there, feeling it humming in my chest.  I would breathe slowly. In. Out. In. Out.  Please god, don’t make me cough.  Then it would happen and it would hurt and it would not stop.  This went on for days.  I had to pile pillows high on my bed to prop myself up so I could sleep because anytime I was horizontal the cough would creep up and kick my ass.  I would be in that lovely place right before sleep, drowsily imagining flying or that I had three arms, when that cough would smash me right back into reality.  I remember lying there with my eyes dry feeling like I would never sleep again.  I finally succumbed and took four of Milla’s triaminic cough strips.  I don’t like taking those kinds of drugs because they drug me so completely I have a hangover for days, but even a hangover was preferable to that shit.  Only it was like the cough sat and waited for the exact SECOND the dextromethorphan wore off.  I love saying that word, dextromethorphan.  I would lie there and say it over and over to take myself into that sleepy place knowing the cough couldn’t get me.  ANYWAY.  The SECOND it wore off, the cough would return with a vengeance worse than anything prior to the attempted cough murder.  I finally started popping the dextromethorphan like some kind of an addict just to sleep.  After about a week of this, my head hurt constantly and I was a walking zombie from lack of non-drug-induced sleep.  That’s about when the tickle began.  I didn’t have any mucous left.  There was just that fucking tickle in the back of my throat.  I’d be sitting there on the computer or reading a book or trying to work and feel that wretched ass tickle.  Tickle.  Tickle.  And have to cough.  And then I could not stop coughing.  I even stuck my finger in the back of my throat in an attempt to stop the tickle.  It didn’t work.  I looked up the tickle on the internet and found many a distressed sufferer lamenting on various medical websites about the wretched ass tickle.  Some had suffered for years.  These were people with chronic conditions, asthma and the like.  Thank GOD I did not have that. I had the tickle for about four days.  I probably would have found a huge bridge from which to fling myself had the tickle continued much longer.  I pity those people who live their lives with the tickle.

ANYWAY.  What was my point? I had one.  The POINT is that I had this bitch of a cold that lasted nearly four weeks, then I began gradually to heal.  There was a period of about five days where I sneezed, but had no other symptoms, but that faded as well.  Even Milla’s aftercare teacher would say, You are doing better. Then the next day he would say, You seem 10 percent better today.  Finally one day he said, I think you are 98 percent better.  Does that mean the cold is all gone and you are well?  I would say, Yes!  I am so much better.  Thank you so much for thinking of me.

Well.  We were both wrong.  I woke up yesterday and the damn headache, lung ache, face snot, sneezing, sore throat, and cough are all back and all at once.  No more of that systematic one at a time shit for this cold.  No.  It’s all back and it’s all back at once.  And you know what is really strange?  My friend Britta had this same crap about the same time I did and in the same order.  And yesterday her shit came back exactly like mine!!  It’s like some miracle virus that tricks you into thinking you are well when you’re not!  It’s so cruel.

So this is what I’m contemplating as I sit here not doing much work because my head hurts and I’m tired and my lungs hurt and I’m WHINING.  Wah wah wah!  I guess I will see now if the pretty orange color stays when I actually post this thing.

DAMN!!  I just typed in Evil Guerrilla Virus and in the process sneezed the biggest grossest sneeze of ick I’ve sneezed in years!  Thank god for tissue and thank god more for soft tissue with lotion in it!  Yikes!

Confessions of a Fraudulent Cancer Patient

Ever since I received this diagnosis, I have been feeling like a fraud. Cancer? Cancer means sickness and oozing, smelliness and hair falling out. That’s not me. I’m young and healthy (knock on wood).  I feel like a fraud walking through the halls of the cancer clinic. I know I look good. I am not being vain; it’s the truth. I have all my hair. I’m thin. I’m attractive. I dress well. I just don’t look like a cancer patient should look, or feel like a cancer patient should feel. Yes, that’s my judgment, but it makes me feel like I don’t have the right to call myself cancer’s victim.  My therapist asked if my feeling like a fraud is a way to feel safe. I told her it does not. And I wasn’t lying. I’m in therapy because of all the other shit I’ve been through, and being in a relationship that pushes my buttons to the brink. Cancer? Cancer is cakewalk. And who would ever dream someone could say those words?

Notes from my journal, January 15, 2007

I consider myself a fraudulent cancer patient…continue reading here.

More on my cancer experience can be found here.

I Miss Autumn

February 9, 2006: I had a dream about her two nights ago. In most of my dreams about her, she is fat and healthy, the way she looked before the disease took over. But in this dream, she was skinny and frail, skeletal and weak. There was a little girl in the dream who was scared of her. She wasn’t scary; she was pathetic. It pains me to remember her this way.

I went to acupuncture again yesterday, and realized that all my physical manifestations lately are of grief: the wretched cough I suffered over a week, the boils, the pimple face, the areas of muscle spasm. I almost cried as I was needled.

I ask myself why this grief can return so fresh eight months after her death. Then I realize that if she had been human, no one would begrudge my feeling this way, and I’m questioning the depth of my feelings because she was a dog.

I sat on the floor last evening near the couch and thought of her and realized again that she will never be here. Ever. I hate the finality of that. I hate missing her so much. I hate the way it makes my heart hurt. I hate that I’m not allowed to feel this much pain because she is a dog and not a human. I loved her so much. I loved her more than any human until Milla was born. She was my first child. Of course I grieve. And I should not question that it has been eight months.

Maybe I should be glad that I get many weeks of feeling no pain of loss. But I realize that when I’m not feeling that loss, if I don’t experience it, I won’t feel much of anything else either. Maybe that’s my lesson. If you don’t let yourself feel the emotions that need to be felt, you won’t be free to feel anything else either.

Near the end, she was almost completely blind, but she was lively. I would take her to the dog park and throw frisbees and sticks for her. I would set her up and touch her muzzle with whatever I was throwing, then guide her head in that direction and toss. She would head out and look until she found what I’d thrown. Her sense of smell must still have been intact because she would find anything, no matter how far I had thrown it, as long as I pointed her in the right direction.